Hi, Just wanted to share a little positivity for anyone currently struggling with treatment side effects or that has just finished treatment. Im currently just over 2 months post treatment (6 weeks of radiotherapy and chemo base of tongue and lymph...
T4 - base of tongue Last radio session tomorrow - which I think I'm going to cancel. The damage caused by the radio to my tongue just seems to be mounting each day. Today, I could barely drink and was unable to eat because of something digging into...
Well ive been today for my treatment planning mask done,and guess what it wasnt two masks after all I start 3weeks treatment on 20th October but in the meantime weve booked a quick holiday pre-treatmenr treatment..
Hi, I’m new here. My husband has just been diagnosed with the above. We are devastated and very frightened. We never thought we’d be here again after he had prostate cancer 8 years ago, which was successfully treated. we are currently waiting to see...
Hi going for planning scans and mask moulding on monday... reading my clinic letter today,it looks like im having a double mask on my head so back and front.... Anyone had this? Bit scared of the thoughts of this.. X
Hi all I have just finished a 6 week chemo and radiotherapy treatment for my tonsil tumour (plus 3 lymph nodes). It seemed to go well - I was able swallow the whole way through and didn’t have to rely too much on painkillers beyond paracetamol - so...
18 months ago I had tors robotic surgery and neck dissection for small cell carcinoma in my tonsil bed. Everything been going fine. 3 weeks ago developed really sore throat on opposite side to surgery. Also noticed sore on side of tongue ( I have a...
So I had my pump off at the start of this week and generally felt quite terrible, like having the flu I would say. Day one of chemo (Cisplatin & F5U) and I started with a sore throat and over the week my oral problems have worsened. My tongue and the...
My husband has just been diagnosed for the second time with SCC of the tongue , the first time was 14 yrs ago but the base of the tongue this time it’s towards the ,idle to left back of his tongue he’s been told he will have reconstruction' he’s had a...
Hi, Ive booked to get MLD on my lymphoedema privately today. I’ve discussed this with my MacMillan nurse (I will listen to her) and she has warned against having it done prior to getting a clear PET scan. Just wondering if anyone else has done this...
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