New to HPV tonsil diagnosis and treatment.

Hi Carran just seen your post and reply on one of the others welcome to the club none of us want to join but here you are. We are a small friendly group who will help if we can.  .Thank you  for reading my blig hope it helps , if I can do it anyone can. I’m fast approaching 3 years post treatment and  living life tk the fullest. Day 4 I remember the first week well . You might start to feel a little irritation in your mouth around now I likened it to bees buzzing away inside. Take heart that h p v driven tumours respond well  to treatment any questions just shout out we will try to help. 
Hazel xx

Hi Carran and welcome. There are a few folk here in the same boat as you. Just on the cusp of treatment. I’m sure they will join in to commiserate and share the day to day grind of treatment. A few more of us longer term winners have stayed behind to help and support 

Remember that no question is daft and whatever is happening to you has happened to somebody else and they can help 

Nearly over week1 then. Well done! Lots of us here have been there recently so lean on us as much as you like

Hi Carran,

Sorry you are here. This time tomorrow you can tick off week 1 of treatment though. I found the first week a drag then the rest passed fairly quickly. 

Hopefully no major side effects yet, but do keep popping on here as things change and you have any questions, or simply need to chat to folk who understand. I'm 18 weeks post treatment now and feel better than I have in years, despite the longer term effects. I wouldn't be in this position without the help of the amazing folk on here, virtually holding my hand through the different stages. 

Take care, Ronnie 

Thank you. Everything is new and strange still,  Constipation / heartburn overload,

Do you have movicol or laxido as constipation is the last thing you need. Make sure you get it prescribed tomorrow. Usual laxatives rarely work for radiotherapy  ( painkillers) constipation The box will give you indication of how many you can take. Please keep on top also you may be starting with acid reflux mention to team in morning there nothing worse than suffering all weekend. It’s always  Friday night when things kick off do try to pre empt. Same with painkillers as  treatment progresses. 
Hazel 

Hi Carran, thats the same diagnosis i had, although i am some time after treatment now.

Its tough, but you can definitely get through it.

Just want to say good luck and any questions please ask.

Trev

Oh, don’t talk to me about constipation   Yet another gift from the disease that just keeps on giving!  Constipation was easily the most miserable part of the whole experience for me. Absolute agony! Hazel is quite right Carran, so make sure you’re regularly taking Movicol/Laxido etc to try and preempt it? It’s quite magical stuff and needs to be taken religiously. 

Morning,

As per the others constipation not good. Whenever on codeine or morphine I needed at least a movicol a day. 

As for the heartburn I have Lansoperazol due to PEG, but needed more by week 3/4. They gave me oxetacine & antacid. Took it 30 mins before eating lunch, dinner & bedtime. Did the trick for heartburn & helped numb throat a bit more to keep eating. 

Hopefully they can sort you out with something today. 

Enjoy the rest you get over the weekend! 

By the way, logging my experiences & emotions in the blog section - Not This Time if you want to have a read. 

Ronnie 

I well remember the constipation, definitely one of the worst parts of it.