My partner went through Chemotherapy and Radiotherapy last year after being diagnosed with Throat cancer. All was going the right direction until secondary lung cancer in March...
He has since been on Immunotherapy having had 5 treatments, one every fortnight with the 6th treatment tomorrow. I can honestly say that he is looking better than he did before his initial cancer diagnosis a year ago and although he is still tired and hasnt got the same energy levels the treatment seems to be doing something !! He has a scan on the 14th of June and will see his consultant the first week in July so we will know more then. I know that his diagnosis is Incurable but treatable which is really hard to come to terms with but i think that we just have to make the most of the times he is feeling up to doing things.
For now we are just doing what we can and trying not to think about the future too much but we have just spent the last week doing the North Coast 500 round the North of Scotland which was amazing. He would normally do all the driving when we are on a road trip but this time i drove and he took a turn when he felt like it.
I just wanted to let anyone else know what immunotherapy can do, well at least in the short term as although we are trying to be positive we are also realistic and to be honest Colin hasnt really had any side effects apart from the general fatigue so long may that last.
I know that there are not too many others on Nivolumab but if anyone else can take a wee bit of comfort from my post then that will be a good thing. The side effects were the biggest worry for us both when we first read up on it.
As i read many times, the alternative to having the treatment isnt good so we battle on together through this hoping for some sort of miracle that will give us more time. Without the Immunotherapy treatment the time given was 3 - 6 months.
Thank you for reading, it feels so good to get this off my chest.
Liz
Hello Liz
Thank you for posting such a wonderfully encouraging post.
There have indeed been some excellent results with Immunotherapy and the range of drugs coming on stream and on license is promising.
I'm so glad you are finding great adventures to share and hope you have many more
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening Liz, what a lovely post to be reading, I don't know much about this treatment so it's wonderful to know there are positives to be had. It's lovely that you are both out enjoying yourselves and not letting Colin's treatment get you down or hold you back, wishing you both all the very best for the future, take care.
Chris x
Its sometimes not easy but its worth it !
