Hello,
I posted a month ago about my husband George’s acid reflux four weeks after treatment and thank you for your replies and apologies for not replying back to you all.
We are now a month (2months post treatment for tonsil cancer T2, N1, M0) and George is doing really well with his range of foods although no pizza or crisps just yet! He had the RIG out a couple of weeks ago which was amazing and he felt so much better for having that out.
He has come off pain relief completely so he has made so many steps forward which is all very positive.
However, he is really finding it hard to plan ahead and get on with things due to the unknown, has the cancer gone hanging over him. He is due his PET scan in July which they have warned us has a 50/50 chance of being inconclusive and having to wait a further three months for another one. His mouth and throat still feeling lumpy, stingy sometimes and generally not normal so he is constantly thinking the cancer is still there. He had 7 weeks of radiotherapy with 2 lots of chemo too and they have treated to cure. We have our second follow up with the Oncologist on Friday and are hoping for some reassurance. Any advice or things we should ask are greatly appreciated. George is at his wits end with the constant worry although there have been so many positives over the past few weeks. I am finding it hard to say they right thing.
Thank you for reading and comments are much appreciated.
Sharon
You're very welcome. Lets hope zoom zooms off soon so we can all look forward to F2F counselling.
The "battle" we face is not with the cancer....the doctors do that, it's with our mental health.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
The "battle" we face is not with the cancer....the doctors do that, it's with our mental health.
What a brilliant line Dani, I've always been dubious about the oft quoted line that x is "bravely fighting" cancer but you've just clarified my thoughts on it in less than twenty words! I can now explain to people why I don't like the battle analogy. That's worth a virtual hug I think!
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Oh Mike I’ll have that hug. Will make it real when we get our annual champs shindig back on Terra Firma.
I’ve never liked journey either.
And I’m never going to “pass” or lose any battle. I shall die.
xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Replying to the last few comments on this thread...
I totally agree this is not a battle - I too hate the term. I do believe that our wellbeing had a massive effect on our ability to deal with the cancer. I hate the term "positivity"; what we need is much more than that and unless you have been there it is difficult to understand that. I guess I will just let that slide for those that say I am positive, but really are doing it politely rather than knowing what we really face.
I also find it strange that people say "pass" and "fade away". I am doing neither of those! I will die; hopefully, in a blaze of glory doing something I love doing 
Hi all,I have used the words journey and battle many times and i think they are apt in many cases, a lot depends on how you interpret them. I think one of the most positive people on here and will always encourage people to do the same. Have a lovely evening, take care.
Chris 
Its sometimes not easy but its worth it !
