Newbie from a partner (update) Tonsil cancer

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Hello everyone, wasn't sure if to continue in last thread as I always seem to write too much.

Update so far (three weeks after end of radiotherapy).

Hubby had a cough (think I mentioned that) and gp phone consult. She prescribed antibiotics. Hubby wasn't impressed with her telephone manner. Asked him questions like 'do you know what was wrong with you' (Of course he does, maybe she wasn't sure how to broach the diagnosis) then said he better have a chest x-ray asap incase it's spread to your lungs (colour drained from him). Thankfully chest x-ray all clear.

Yesterday was a face to face with ENT consultant who did his op, he was lovely. Hubby had a camera down throat/up nose and all looks good and he re-confirmed that the one tonsil was the primary. He was surprised that hubby hasn't had any physio for swallowing but it could be that he's with two different hospitals and one is assuming other ones doing it and covid etc (but consultant is now on the case for that one).The physio there watched him swallow two glasses of water and said swallow is good.

They did read him the riot act that he's not even trying any food, but came home and he ate a very small bowl of spag bol and a yoghurt (plus his usual shakes). Onwards & upwards and stay safe everyone.

  • That's all positive news, which is good to hear., food intake can be a while getting back to, as you just don't feel like it. I used to dread trying to eat, however it will take time but he will get there. Best wishes.

    Regards Ray.

  • Thank you Ray, And he's eaten food today also...can't quite believe it. May only be child size portions but he's doing it.

  • That's a fab start. It is incredibly hard when your tastes/saliva have been compromised, to feel interested in food. My husband used to get quite upset that he spent ages trying to think of something to make me for dinner, only for me to push it around a plate after half a tablespoon.As Ray says, you kind of wake up thinking how can I avoid breakfast/lunch/dinner, even though you know your recovery will be better with eating.  A year and a bit on, I have just eaten a bacon sandwich and not thought anything of it. You will both get through this. All the very best. Tricia

    Piya10
  • Oh that's really good news Hun that your husband's consultant is pleased with his progress and he's starting to eat.  Child size portions are fine to begin with.  I used to keep experimenting by taking tiny amounts of food from other people's plates to see how I got on with them.

    As you say, onwards and upwards.

    Linda x

  • Thank you Tricia, I think I'm understanding your quote of waking up thinking how can I avoid a meal today. I empathize with your hubby making you nice meals (I wasn't even getting to that stage of making it. It was a flat refusal of any food). 

  • Well what a hugely more encouraging post. So pleased sense is prevailing over fear, but we all know how difficult that is.  Excellent that he is eating a little. One step at a time and he'll get there. Enjoy Easter XX

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you Dani. Wanted to dance round the room so chuffed that he's eaten (how pleasing that something like that can be such a milestone). 

  • Hugging

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • That is excellent news and gives me a bit of hope - I am a little behind your husband (finished around 10 days ago) , just trying different foods but I am not getting too far tastes are ok but textures I am struggling with.  I can eat most soft foods like yoghurt, custard, weetabix but anything solid hasn't worked so far.  Tried scrambled egg today and didn't get too far.  I hope I am at your husband stage when the time comes.  Did you home make the foods (spag bol) or just buy ready made - heard the ready made ones are easier to tolerate.

    Thanks

    Sue x

  • Hi Piya great news about the bacon sandwich , remember from your early days we all the inwe will never eat proper food again but we do .

    yes we’ve all pushed food round the plate , I used to hide stuff under neath other things .Yes waking thu king how can I Ava is food today is a common theme.

    Onwards and upwards

    Hazel xx  

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/