Initial follow ups after treatment finishes

Hi Ian

My followup appts were every 6 weeks or so once I'd completed treatment.  This was before Covid so obviously they were face to face appts and I know many face to face appts have been replaced in the last year with telephone appts.  

I'm sure your telephone appt will be OK BUT if you're at all concerned about anything please do contact your team to be seen.

At 3 weeks recovery will only just about be starting and can be a slow process.  You should hopefully begin to see some real progress at about 8 weeks. 

All the best.

Linda x

3 weeks I wasn’t eating anything. 6 weeks I could manage soft food and my NG tube was out. 12 weeks I managed a rare steak.... didn’t taste of much though 

I wasn’t off morphine till 12 weeks. 
Follow ups were six weeks with a PET/CT at 16

hi Ian 

Can’t really add much to Linda snd Dani s comments. I had n g tube out at 3 weeks but only replaced it by taking ensures orally. Aim for 2500 calories every day plus 2-3 litres of water . Recovery varies between us all but one thing is you can’t rush it. 
you might find more info I my blog or Dani’s links below 

Hazel 

Thank you thats put my mind at rest it just seems strange you see someone every day for 6 weeks then your on your own.

Thank you I have a PEG tube so fortisips going through that and I'm managing soggy cornflakes  and sometimes a bit of cottage pie or mash potatoe but appetite has completely disappeared!

Yes, I think most of us find it odd adjusting to not seeing someone at the hospital every day Ian.

Sounds like you're doing very well with your eating so soon after treatment - well done!

I found I had no appetite all the time I was being fed through the NG tube.  Those supplements just filled me up so much.

Linda x

I finshed 9 days ago and the team arranged weekly email reviews but I went to see them yesterday as I was concerned about a very sore area on my tongue. I have a direct number to the team too so feel pretty supported. 

Not sure where I should be in my revocery post treatment but they were happy with things yesterday. I am using tube for Fortisips too and trying to eat tried small amounts of weetabix, soup, yoghurt, ice cream but I don't have much of an appetite either. 

Sue

H8 Sue 

well done on completing treatment and getting a face to face when you needed the reassurance.You will find your mouth tongue area does  go through phases of differing degrees  of soreness, but you did the  right thing. 

you are  also doing well trying proper foods ,unfortunately appetite takes a good while to reappear for many of us. The best way to look at food is as a fuel , it’s a case of eat to live as opposed to live to eat for now .Just Keep your calorie intake up and drink either orally or via peg water. 

Hazel x

H8 Sue 

well done on completing treatment and getting a face to face when you needed the reassurance.You will find your mouth tongue area does  go through phases of differing degrees  of soreness, but you did the  right thing. 

you are  also doing well trying proper foods ,unfortunately appetite takes a good while to reappear for many of us. The best way to look at food is as a fuel , it’s a case of eat to live as opposed to live to eat for now .Just Keep your calorie intake up and drink either orally or via peg water. 

Hazel x

hi Yes the feeling of being abandoned was the same before covid I likened it to being thrown out to the lions.You have been seen daily by various medical people then wham .

ps appetite doe go it’s a case of eating for eating sake.

If we can help just ask 

Hazel