Removal of lymph nodes - have any of you not had this done?

Yes - I was told to massage my neck but wasn't doing it the way you showed in your video.  I've just been having phone calls so I guess its more difficult to get that across.

Hi,
Im another that didnt have swollen lymph node  removed. In my case it was still very swollen after treatment but gradually went down and has been ever since.

Thats good, its such a relief when they shrink.

I am waiting to find out. Scans next week and MT the following Tuesday.  There is no indication that it is not treatable.

Hi Peter

The waiting is the worst thing and then trying to get your head about 'what next'. It's really good news that it is treatable though.

Wishing you all the best.

Lyn

Good luck Peter and also wishing you all the best.

Sasha

Hi Sasha, I was diagnosed with SCC in my lymph node but with Unknown Primary in June last year.  I underwent  30 sessions of RT and 2 of Chemo but did not have my lymph node removed. My 12 week post treatment PET scan showed that there is now no abnormality in the area treated or anywhere else. Surgery to remove the lymph node was never raised but I have thought that at least it’s an option should I suffer with this again. 

Hi Sasha I've just joined this forum do im looking through posts. I had a sentinel node biopsy & 3 nodes came back positive.  My surgeon said there was no evidence that a doing a neck clearance pre radiotherapy was beneficial.  I had 30 doses radiotherapy & 2 doses of chemo. I'm 2.5 years post treatment & all is still clear.

Cathy

All this sounds like my husbands story had lumps and lymph nodes removed they couldn't find the primary after 18months he noticed changes he pushed and pushed for an mri camera down throat showed noing first scan showed nothing ct showed nothing then biopsy showed cancer this all took from may last yr had surgery 4weeks ago ..they thought they were removing a 17mm growth from the scan once suron was in there he saw a 70mm growth ..but he couldnt get clear margins around it without compromising the tongue ..my husband is so scared it will grow back like before surgeon cant guarantee it  weird how others have said their primary not seen on a scan 

Hi Sasha , I have/had   base of tongue cancer which apparently spread to both lymph nodes in my neck. There was no mention of surgery but 30 rounds of RT and 6 chemo but I only manage 4 chemo as ill. All the best Regards Min