Help and advice needed - Radiotherapy/Chemo

Hi, Sue, They are easily removed, however the district nurse came to remove mine, I don't think they would want you to do it yourself.

Regards Ray.

Heavens no. Sorry if I gave that impression. A NG tube is  a different thing altogether. 

Hi Sue

My experience was the same as TrevW.  It wasn't easy and towards the end of treatment it ws suggested I would require a NG tube but in the end my weight stabilised and I got through without it.  I did have a NG tube while in hospital after surgery to remove the tumour from the base of my tongue and it was not a problem.

As you've probably realised from your replies there is no right or wrong way to approach this as everyone's experience is slightly different.  I suppose after consideration you have to go with your gut instinct as to what you feel is right for you. 

Wishing you all the best with your treatment.

Linda x

Thanks Linda - yes you are right there s no right or wrong way and I am struggling to make a decision, I sit 50/50 either way which doesn't help! 

Sue

Whichever decision you make won't be the end of the world.  If you decide to have a PEG it will be in place should you need it.  If you decide not to then a NG tube is always available should you require it.

I wasn't given the option so didn't have to wring my hands as to what to do.

Linda x

Hi, Beesuit, yes I realize they are totally differant, I wasn't suggesting you were wrong to remove your NG tube. Due to the RIG being surgically  fitted they have to monitor the site for a short while after removal.

Regards Ray.

Ray apologies again. Post was meant for Sue. 

Thanks Dani and Ray for your input it is very much appreciated.  I wouldn't be removing a PEG myself not sure I would be brave enough to remove a NG tube either so no harm done.

Dani - can I ask a question about the NG tube did you find it came out on its own often or did it go down the wrong hole at any point? 

Thanks

Sue

Hi Sue

I had cancer somewhere around tonsil area (primary not found) and a neck dissection, CT & Chemo. I was told I would probably need a feeding tube at some point, but funnily enough no decision to make then, no leaflets and nothing further said by any of my team. I got through surgery/RT and chemo with paracetamol/Ibuoprofen and co-codamol and they never mentioned a tube again. It was tough when food started to taste metally/salty. I think that lasted 2 weeks. I tried to eat little and often and supplemented with Fortisips. I am possibly in the minority to get through the whole treatment like this but, ever so greatful. I never wanted a tube unless team had absolutely pushed it as I hate anything like that. So I guess with me, it was possibly good luck on my side. Good luck with whichever avenue you choose.

Tricia

It’s a long tube and there is quite a bit in the stomach so it stays put though you are supposed to check it regularly. (Aspirate a little in a syringe and check it with a pH stick) 

I suffered with a lot of nausea and did vomit up the tube but it was replaced at RT no problem. There was no way it came out on its own.