Decision time and I want to do the best I can, after seeing most of the people today

The reason i have advised to having a PEG is not because of looks it's because i hear of so many people struggling with their swallowing because they were not offered a PEG, i have had 3 operations radio and chemo and have always had a PEG. Please don't stress yourself over this as it's your choice and don't feel I'm telling you what to do, you will get there either way. Good luck and i hope all goes well,take care.

                                                                                       Chris  

It is hard to know what to advise as no-one knows how poorly your mouth will get

Personally I was dead against having one because I hated the idea, and the thought made me queasy

But I did lose a fair bit of weight as a result and I had three or four quite rough weeks.. where each fortisip took me 45 mins to get down. 

However my team made it clear a tube would be available if they felt I was losing too much weight or I was becoming dehydrated. I had one ropey week where I think the consultant considered ...strongly recommending a tube

Thanks Chris and Trev good advice as usual. I suppose it is one less thing to worry about especially if one is feeling unwell. I was dead set against it and thought what the hell I will get through it , As my partner said at least  its there if needed. Got a few appointments this week and a kidney function test next week , which seems odd as they said they would try and start treatment next week Regards Min 

Hi Minmax

Can I ask what you decided on - I am in the exact same boat now and not sure what to do.  Due to start treatment in a few weeks been given info to go away with and decide.  I have been told I will probably need some help as getting radiotherapy to both sides of neck (also having 6 chemo).

Thanks

Sue

Hi Sue and welcome to our little community. It’s a fraught time, this period between diagnosis and start of treatment. I wasn’t offered a stomach tube but had a nasogastric tube when I needed it. It was a life saver. I’m glad I didn’t have the worry of hospital admission for surgery and having to look after the PEG. 
When the tube had done its work I just took it out. It was in use for 8 weeks
Just a personal opinion of course. 
Some people  have hardly needed their tube at all.

Hi Sue welcome to forum wecare a smsll knit community. I am Hazel aka Radioactiveraz I am 30 month post radiotherapy for tonsil cancer with several affected lymph nodes. I had a n g tube fitted at week 3 for 6 weeks. Not everyone needs one treatment is hard but doable. If we on here can help just shout out. 
Once treatment starts thjngs fall into place. 
Hazel xx