I have to make the choice of having a peg or rig fitted next week , doctor has flagged up some issue . The Dietician has said that most people have them fitted but 25% dont . Thats a large percentage that dont . I know it can be gruelling but I just have to deal with it . I am not bothered about the food tasting bad. I suppose I am more concerned about how this treatment is going to affect me. I am having 6 chemo every monday along with the 30 radiotherapy and The Doctor said I won't be able to work as its going to affect me. I am thinking to do my treatments and then I have the rest of the day to deal with sleeping ,eating and drinking. I know others here have been there and done it and suppose I just want their valued opinions , Sorry for the long post Many Thanks Min
All you can do is go with what you are comfortable with. My oncologist was confident I would maintain swallow I was radiated on left hand side mostly with less on right side of neck. Maybe ask what plans are for your radiotherapy if both sides getting full maybe a Peg is better. I was fine with n g tube maybe your AF issues play a part as well ? Whatever you choose you have to be comfortable with the decision do it fir you not your partner my hubby took charge of my n g tube feeding routine made him feel he was doing something. We had spreadsheet s for meds feeds etc
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I’ll echo what Hazel’s said. Do what’s comfortable for you. Don’t get railroaded. Sorry if I’m treading on some toes here but why does your partner prefer a PEG to an NG tube? Could it be because it’s invisible?
In week six of my treatment when I looked gaunt pale and with a tube stuck to my cheek and snaking down my nose I looked like a cancer patient. On Skype my daughter told me I was beautiful
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi will go with Dani I didn’t mind who saw my n g tube I went out for walks . Our 7 year old grandson never batted an eye in fact he asked to try the feed needless to say he didn’t like the taste !
don’t be railroaded the decision is yours remember that.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi, Minmax, I have to agree with Beesuit and RadioactiveRaz, about having the PEG or not, I think it is important to have it for your own reasons, and not to be influenced by anybody else.
Regards Ray.
Thanks Hazel after reading and rereading the posts its a lot of gain for little pain and two less things to worry about I suppose Regards min
Hi Dani My partner isn't bothered either way and when the nurse mentioned it I was the one who said no straight away as I had it in my mind that I wouldn't need it. I suppose I dont know how the treatment will affect me and its a belt and braces approach getting it fitted. My partner said she would go for the stomach one and its there if required which makes sense. Maybe we picked it up wrong on the time scale also for fitting as she said 2 days for the peg to be fitted Regards Min
Hi Minmax.For some reason I am now getting emails in Inbox and Junk too, so I hope I have managed to keep up. Consultant telling us about treatment (but not yet refined) had mentioned a feeding tube and then the subject was never brought up again. I have no idea how I might have reacted had they done so. The team kept a close eye on me throughout and I think (perhaps because I lost so little weight-5lbs in all), they couldn't see any reason to suggest a tube. I was keen to maintain swallow and perhaps deep down, I thought I might get lazy if they suggested a tube during treatment. Like Hazel, I had more RT to the left where lump was and minimal to the right. Hubby said to go with whatever I felt comfortable with and he would get me through the eating. I had perhaps 2 weeks where meals were tea, mashed sweet potato and a yoghurt but, reading others experiences, I do think I am very much in the minority. Go with your gut (excuse the pun) and I hope whatever you decide, it all goes well. Tricia
Wow Piya10 that is amazing good for you . Yes as you say very much in the minority. If I knew it would only be 2 weeks similar or a month on soup I could deal with it no problem but as been mentioned we react differently. As my partner said get the peg and if I have to use it its there which makes sense Many Thanks Piya all the best Regards Min
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