I had to come back and visit this site which at one point was a lifeline for me in the early hours of the morning when I was completely overtook by anxiety regarding my diagnosis and long-term prognosis.
I just wanted to come back and say that I am 2 years post treatment and I am Currently drinking a double gin and tonic, I have about 95% of my saliva back I eat most foods however I do need water - life does get back to normal for most and there is hope and the time eventually goes so quickly.
So for anyone that is new to this dreaded scenario there is light at the end of the tunnel and we are proof of that so have faith keep going with the treatment and life will get back to normal before you know it. Much love jules x
Hi Julesey nice to see you back to give such positive encouragement to people newly diagnosed or under treatment. I’m so pleased you are so well and on the mend. Not tried a Gin yet but I’m currently wrapped round a real ale to celebrate some good cancer news from a friend.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi there,
This is great to hear. I am exactly in the same position now as your good self. There’ve been lots of ups and downs for both of us, but I am now also gaining saliva, and eating well too.
Yes, let’s celebrate. We have much to be grateful for, so let’s share our good news!
Mark
Good evening Jules, i remember you from those early days so its fantastic to be reading this positive uplifting post,im not on the Gin but as with Danni a bottle of real ale. Thanks for this update,so cheers to the future , best wishes ,take care.
Chris x
Hi Jules. I like you just over 2 year s post treatment impressed with gin I can just about do the tonic part .But I can like yiu eat most things ,rarely need water to -get food down but always carry it with me I too have about 95% saliva , when we look back to those early days never thought my mouth would feel right but it does.
Onwards and upwards good to hear from you.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi there - good to hear from you
so yes that’s the positives I do get the dark days where I’m paranoid regarding any ache or pain. The back of my tongue is aching this week I’m constantly swallowing and over thinking (sure the ache isn’t normal) but it’s sent me spiralling into a black hole of anxiety - I also have thyroid nodule too that been biopsied and I have to have it done again-as not enough cells to analyse. So all in all really positive recovery but one little hiccup can drag you back.to that place. I just didn’t want people to have no hope when beginning the journey as it get better xx
Lovely to hear that you are recovering well - we do have so much to be grateful for indeed - some days better than others, that was a particularly good day, the gin helped I think! Today not so good. Ive developed all I can describe as an ‘OCD’ type of anxiety - very strange - I’m just super sensitive to any ache or pain any where in the head neck region. My tongue aches at the back so I’m continuously swallowing checking it and looking down my throat- crazy! I over think and panic it’s horrible -
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007