Severe muscle jerks

FormerMember
FormerMember
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My partner has stage 4 throat cancer which has spread to his lungs and neck bone 

He is on medication for liver disease aswell as morphine sulphate for pain and recently zopiclone to help sleep 

The last two nights he's had really aggressive jerking in his whole body, really bad night sweats and us shouting out and screaming 

Has anyone else experienced this 

I try to wake him when it gets really bad but it's very difficult to do this and he gets worse when I do 

It almost looks like he's having a seizure at times 

Could it be the medications or is this just what it's going to be like 

He doesn't remember when he does wake up 

Sharon xx

  • Hi Sharon

    I know when my parents have been prescribed morphine they react in a similar way but I would check with your team.

    Wishing you and your partner all the best.

    Linda x

  • FormerMember
    FormerMember in reply to LindaWT

    Thankyou Linda 

    Did they change the medication it's awful to see

    Sharon xx

  • They did for my dad as he was hallucinating terribly and being quite disruptive.  My step dad wasn't so bad and continued with the morphine so my mum had to grit her teeth!  I would definitely run it passed your partner's team though.

    Linda x

  • FormerMember
    FormerMember in reply to LindaWT

    I will call them tomorrow his consultant us on holiday and I've phoned his nurse a few times and as lovely as she is I feel like I'm being a pain and taking up too much if her time 

    I phoned last week about him not sleeping and she told me to phone his gp

    Sharon xx

  • Sharon  you shouldn’t be dismissed in this fashion. I would phone his CNS and follow it up with an email to her and your consultant’s secretary. Yes, you should phone your GP too. You might get some more immediate help. 
    You are never a pain. You are dealing with a very difficult and demanding situation. 
    Best of luck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Sharon,  I absolutely agree with Dani.  You're in a completely unknown situation so contact the team as much as you feel you need to.  When my father in law was desperately unwell I was on the phone at least once a day for advice.

    Linda x 

  • FormerMember
    FormerMember in reply to LindaWT

    Thanks guys 

    This site is a god send it really is 

    Caring for someone with cancer is a lonely place sometimes 

    Thanks so much for all your help 

    Sharon xx

  • FormerMember
    FormerMember in reply to Beesuit

    Thankyou so much for all your lovely comments 

    It's sometimes very lonely trying to deal with all this with a brave face for the kids and for him 

    This site is so helpful with all you lovely people on hand to chat with 

    Thankyou

    Sharon xx