My partner has stage 4 throat cancer which has spread to his lungs and neck bone
He is on medication for liver disease aswell as morphine sulphate for pain and recently zopiclone to help sleep
The last two nights he's had really aggressive jerking in his whole body, really bad night sweats and us shouting out and screaming
Has anyone else experienced this
I try to wake him when it gets really bad but it's very difficult to do this and he gets worse when I do
It almost looks like he's having a seizure at times
Could it be the medications or is this just what it's going to be like
He doesn't remember when he does wake up
Sharon xx
They did for my dad as he was hallucinating terribly and being quite disruptive. My step dad wasn't so bad and continued with the morphine so my mum had to grit her teeth! I would definitely run it passed your partner's team though.
Linda x
I will call them tomorrow his consultant us on holiday and I've phoned his nurse a few times and as lovely as she is I feel like I'm being a pain and taking up too much if her time
I phoned last week about him not sleeping and she told me to phone his gp
Sharon xx
Sharon you shouldn’t be dismissed in this fashion. I would phone his CNS and follow it up with an email to her and your consultant’s secretary. Yes, you should phone your GP too. You might get some more immediate help.
You are never a pain. You are dealing with a very difficult and demanding situation.
Best of luck.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Sharon, I absolutely agree with Dani. You're in a completely unknown situation so contact the team as much as you feel you need to. When my father in law was desperately unwell I was on the phone at least once a day for advice.
Linda x
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