Do not accept being downgraded !

Hi Hazel

Sorry to hear what you've had to go through - most upsetting.  By coincidence I received a phone call this morning.  After some discussion it transpires I too have slipped off the radar.  Havn't had a check up face to face since the beginning of the year and only one phone call from a consultant back in June.   No further appts had been made for me either for a phone call or face to face and if it hadn't been for the call today I wouldn't have received any further appts.  Not sure if this was due to bean counters or an admin slip up!   Due to my vocal difficulties (it's really problematic trying to speak on the phone) and other problems they're going to try to get a face to face appt, all depending on what happens of course with Covid. 

Well done  for fighting your corner and hope you get your face to face appt.

Linda x

Hi Hazel 

Thanks fort posting this here.

This is happening to lots of people and many don’t have the wherewithal to raise the issue or complain.

Thank heavens you could fight your corner. While you’re here ( and anybody reading this thread) post a comment on Macmillan’s wall in their campaign on the forgotten C.

Every bit helps

FORGOTTEN C WALL

I had a face to face check up on Tuesday with the full works tube up nose etc, this is the first one since January, with two phone calls in between. This is terrible that people are being overlooked, as I think these check ups are really reassuring. hope you can get something sorted out, and get a face to face check up.

Thank you Linda, my Macmillan nurse says I will if not this time,it will be be before end of year as they don’t want me to go over a year without being seen.My trust are using one if the smaller hospitals as a covid free zone or at least as covid free as they can no patients are there.I will report back and also the findings of the p a l s investigation.Hooe you get back in track as well.

Hazel xx

Have posted in wall Plus will report back the findings after investigation done as to why I was downgraded.

H xx

Hazel

That is appalling  treatment and you have done exactly the right thing by raising it.  Having spent 20 years working in and around the NHS system I never hesitate to formally complain if I see something going wrong.  I know the system so it is relatively easy for me to find back doors to use.  However, so many don't and are vulnerable so a formal complaint when I see a process that is wrong makes the organisation take stock and put it right for others.

Well done on fighting your corner and, please, everyone else do the same so the "system" does not let us down; especially with the Covid excuse!

Hi Peter. Thank you I can’t tell you how upset I was to be told I had been taken off the cancer clinics and downgraded to general ENT.Our daughter works within the NHS in governance protocol she says the same if we the patients don’t complain they can’t do anything about it. I had another phone call yesterday from p a l s they asked for formal permission to investigate via  the trust board and governance,so watch this space. How are you ? Are you still on a watch and wait protocol ?

Hazel x

Well I have an oncologist appointment next Thursday. I haven't had a scope since January and I'm not quite at two years yet. They better get me in or I'll wave Hazel at them

PFJTHS said:

Well done on fighting your corner and, please, everyone else do the same so the "system" does not let us down; especially with the Covid excuse!

Yes.....a salutary lesson.

Speak up or you never will be heard

Thanks Peter

Eeeek!