Husbands surgery

Hi Minitoffee

So sorry you have all found yourself in this situation

Can you reach out to his Clinical Nurse Specialist? He would have been allocated one and she can act as liaison 

Has he a Macmillan nurse? It might be worth giving the Macmillan hotline a ring. They will be able to give you some advice on how to manage this awful situation

The number is 0808 808 00 00

If you look at SUPPORT there is a chat and email option too

I hope you get somewhere soon. It's a devastating surgery to go through alone in these Covid times.

Thanks for your reply! The same idea came to me around 4am so I have emailed his key worker with my concerns and suggestions. I also included his consultants secretary in the email as she has been brilliant and has access to the ward where his bag is being kept in a locker. 
I’m just waiting another half an hour before ringing the ITU for an update in the hope the doctors will have completed their rounds. 
again, thank you for taking the time to reply- I really appreciate it. 
MT

Good luck. Let us know how you get on when you feel able to. 

Oh no minitoffee .I truly hope by now yiuve has some contact with him , he will know how much you care about him .Hooefully others will,pop on later who have gone through something similar am thinking off Chris in here who has  gone through something similar. 

Take care and hug your children extra hard from their dad tonight .On a separate issue today I have had to contact my Macmillan nurse she responded straight away I’ve nit git a problem just needed advise.

Hazel xx 

So the good news is the consultants secretary ran around the hospital and tracked down his bag! She took it to ITU and was able to convince a nurse to let him have his things. He has managed to send me a text this afternoon which meant the world to us all! He told us he loved us and asked how we were but has admitted to feeling hopeless today. I’ve reminded him it’s day 3 and we expected it. I’ve continued to have a few random messages today that have made the world of difference. He had questions I was able to answer and reassure him about. He just messaged saying he hadn’t realised how much of a difference getting a message would mean to him. 
he has actually been in the chair today (drugs and weakness made him sick) and he’s concerned the swelling has now shut his eye. Nurses say MaxFacs are keeping a watch but they expected it. 
best of all was the one test he sent to the kids telling them he loved them. It’s made their day! 
thanks all xx

Wonderful. A little human contact can warm the most desperate heart. I'm so pleased this has been sorted for you.Send him love and healing hugs from all of us 

Oh thank goodness Minitoffee.  Great news you've been able to contact your husband.  It must have made such a huge difference for all of you.

My father in law had a similar operation a few years ago and was pretty poorly for a while afterwards so you're right to remind your husband that it's really early days after such a big op.

Have they given you any indication as to.when you may be able to visit?

Linda x

We’ve been told no visitors at all until the day he’s discharged and we’ll meet him at the door when a nurse brings him to us. He’s expected to be in at least 14 days. We’ve all said it would make so much difference if just one of us (me) was able to go in and see him. But- given the lack of communication until today- I’m grateful he’s been allowed his phone. I have stayed in self imposed isolation just in case they say I can visit. His parents and sister are doing things like shopping for us - were very lucky to have support x

That's so tough not allowing at least one visitor.  Seems you're being very sensible in your approach though on the off chance they may allow you to visit.  

So pleased you now have phone contact.

Linda x

Thank you for your kind words. And thanks to everyone that’s taken the time to reply. I felt very disconnected with his care this morning and very down myself. It’s amazing what a small amount of communication can do to lift spirits.
Hoping he continues to improve as expected. I’m so proud I’m his wife! He’s our everything. He is such a kind man and judging by the messages of support I’ve had- he means a lot to a lot of people. I have told him though, when he comes home I will be officially resigning from the newly created communication secretary post and will gladly be accepting the carers role instead (this did get a laughing emoji in reply!)