I know exactly what you mean about taste buds! My RT finished at the end of March, took a long while for taste to return! and it's not fully back :-( can't taste chocolate, or sweet stuff, can't eat fruit, can but don't enjoy it any more, doesn't taste the same or taste right :-( I think RT is worse than chemo, hope you get through this without loosing your taste buds
Yes it seems you do know exactly what I mean ,my sweet taste was tasting salty and like you say chocolate even the white chocolate was salty,I had egg on toast this morning for the first time since my RT beeen having Weetabix,even though I still have to have the odd drink of water to help it go down.
next day after first Cheamo I did have some diarrhea and was very sleepy but so far today I am ok,apparently this is how it works you get some side effects you just get over them and then you start again.
They say I may have to have stem cell transplant after this not looking forward to that but I will cross each bridge as I come to it.
O wow egg on toast! I couldn't do bread or toast for a long long time! Also couldn't do weetabix. Tried ice creams, they tasted like blu tack, or used up car oil! It was horrible.
Yes I was sick after first chemo, for like 2-3 weeks, had fever, felt tired, was in bed all day every day, falling asleep at random times, think I slept for 14h + a day, waking up at 3pm. Sleep helps body recover, plus not in pain when sleeping.
What I learnt was not to have any food before chemo, or during it, especially hospital food, I made a mistake of having a chicken sandwich just before my chemo, worst mistake, it's been 6 months, a thought of chicken sandwich even makes me sick now!
I know what you mean about being tired all the time,and as for food since my egg on toast I can't seem to eat anything,even Weetabix is a stuggle,just want to be normal but I know normal is a long way off,can't stand taking the tablets.
I know what you mean about the change of taste. I am 7 years post my first radiotherapy and my taste has never been quite the same.
I thought that the same would happen again with my radiotherapy this year but this time my taste buds were not greatly affected. My oncologist says it is because now they can target the area much more accurately so he managed to avoid most of my taste buds.
Over time my taste has definitely improved and things taste mostly normal.
I think maybe having a dry mouth affects things too.
I found the taste of savoury things improved the most first. I longed for eggs benedict after my radiotherapy but was sadly disappointed with the taste initially but now it is back on my list of favourites.
I now have different foods that are my favourites and had to give up on some of the old ones.
Everyone is different with their recovery and I am sure improvement with taste fits into that category also and everyone has a different story.
Thank you for your reply,sweet things starting to taste salty again,I thought they said taste would change while having treatment but I didn't think it would affect me so long, in fact while having treatment I had no real side effects ,it was after treatment my problems started.
I feel for you 7 years and only now getting back to normal and having to have treatment again.
Yes you're right you just have to get on with it so not much point in moaning. I watch my husband eating an an egg and bacon toasted sandwich and enjoy it by proxy nowadays although I can now manage a poached or boiled egg but am unable to manage the bacon. However that is not just to do with taste now but other eating issues I have since my last operation. You adjust to the changes.
You sound so positive about things that I know you will manage really well.
We all have our way of coping and if moaning works for you no judgement here (lol).
Sophie is actually my granddaughter. When I was first joining up with MacMillan I tried several user names but they kept on being rejected. I finally landed on Sophie with the 66 which is my age and bingo it was accepted so that is who I now am.
Sophie is a bit of a symbol of what I would like to be. She is 4 so youth is definitely something I would like again. She also has a huge personality, never gives up and is always on the go.
On the down side she is a bit heavy handed and breaks things on a regular basis so maybe that is something I would like to avoid but bless her she has a go at anything.
