When 1st out of hospital I hat lots of stuff on prescription, paracetamol, ibuprofen, mouth washes, skin creams, toothpaste, movicol etc, which was all free due to my medical exemption.
16 months later, I still have a lot of stuff on repeat prescription, needed some movicol the other day, but afterwards thought, should I really be getting this sort of stuff for free.
What do others do/think?
Do you still get general medication like this free via prescription or pay for it off the shelf?
Should I feel guilty about not paying for movicol, specialist toothpaste, dermatological cream, etc.?
Hi I have a medical exemption too and I dont feel guilty for free prescriptions.Why should I? I was working hard paid taxes and NI its.not my fault I got cancer I was living healthy also struggling on universal credit so why should I pay for my meds?
Something like paracetamol I buy myself but when I had a skin rash from chemo and needed cream or need a anxiety meds or sleeping pills I dont feel guilty at all.
You shouldnt feel guilty about this we didnt choose to have cancer.
No, no and thrice no (getting Shakespearean there), absolutely no guilt whatever; the mouthwash/toothpaste/creams are a direct result of my cancer. It actually annoys the hell out of me that I have to pay for the dentist/hygienist when I have to visit more frequently than "Joe Public" through no fault of my own.
Don't give it a second thought would be my advice.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Why feel guilty? I know medicines such as paracetamol were removed from general prescription some years ago, but it was never intended that removal was for people with chronic pain; just those with a sniffle!
So...
Firstly you cant by paracetamol in sufficient quantity to meet chronic pain needs. In my case I was sending my wife out on a 12 mile round trip to get me the allowed 2 packets at the supermarket - yes I know you can buy, at much greater cost, bigger packets at the pharmacy.
Secondly the cost of cancer soon builds up. Small sums for over the counter, needed frequently. Factor in the travel and parking costs and you will be many £1000s down over the course of treatment.
Thirdly, at the moment, you cant get paracetamol and ibuprofen in the supermarket. It has been panic brought out! Prescription needed...
Finally, as has been already pointed out, for years you've paid into an " insurance premium" called NI. Don't feel guilty now its paying out!
So don't feel guilty. Use the medicine wisely and you're working within the spirit of the NHS' model of operation.
Nope no guilt.
prescriptions are free in Wales
What does annoy me is that I can’t pass on my huge now not needed pharmacy to a fellow sufferer
Taking the drugs back means the pharmacy destroys them. Done if the packets are un opened.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
This is what i was saying the other day Dani about some people are denied certain drugs etc , I agree with the other guys about not feeling guilty what does annoy is when people get drugs etc free when they are not entitled to them. Are all prescriptions free in Wales or just selected items?
Chris . x
Hiya chris2012
From April 1st 2007 the NHS prescription charge was abolished for people in Wales.
Main reason put forward was to help the many people who had long term chronic illnesses from the coal and steel industry communities who were on low income or not working due to ill health and couldn't afford multiple medications.
Thanks Dreamthief, I can see why this was introduced and is a brilliant idea, as i used to work crawling around the bottom of ships burning, welding and grinding , even though I wore a mask it still manages to bypass them.The things we do to earn a bob or two. Im ok mate still plodding along, hope is well with you and Jackie and the house.
All the best Chris .
chris2012 reminds me of an old boy I met in the waiting room for a mobile PET-CT scanner in Plymouth back in the days they were "primary hunting" me.
He'd worked all his life in Plymouth docks, massive asbestos exposure; he had lung cancer. Lovely chap but I very much doubt he's still with us, hope I'm wrong.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
I have to say I have absolutely no feelings of guilt at all.
Me and hubby are both off work with cancer (nearly 6 months) and I’m on half pay and he’s on no pay.
We don’t get paracetamol or ibuprofen on prescription but we get everything else i.e. mouthwash, toothpaste, synthetic saliva spray etc.
I’ve not thought about Movicol as we still have a bucketful left from the hospital.
I think a 5 year exemption for cancer patients is the least the government can do.
Now then....dealing with DWP is a whole other story!!!
Im trying to get ESA for Ken and sent the forms off 2 months ago! We’ve still not heard anything so it’s a good job we’re not completely destitute!
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
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