Here we go round the Mulberry Bush

Oh no Mo

like Dani says please ring your team in mornjng. I did have major radiation burn from week 4 and for 3 weeks I had medical grade cling film wrapped around me before the mask was put on every day. Hope that helps you. 
please keep iff Dr Google no matter how tempting we are all different and the info on there can be years out of date. 
hope you got Sherman showered 

sending hugs as I wait for our ferry from Spain back to Blighty tomorrow 

Hazel xx

How frustrating for you Mo.

On reading your post my first thoughts are either:  a)  The different teams aren't talking to each other or b)  The different teams are all working together and have a master plan that you're not aware of yet.  Either way hopefully you'll be able to get to the bottom of everything with some calls on Monday.

Good luck and fingers crossed that you'll have some answers soon.

Linda x

Hello All

Quick update, had facial surgery yesterday, 4 excisions and one biopsy, stayed in last night as did not get out of surgery until 6 pm then an hour in recovery so by the time i got to the ward the doctors had all gone home and no one to sign discharge papers.  Anyway i was spoilt with a room to myself with full freeview TV and ensuite facilities so not all bad.  Lung surgery is booked for 2 weeks today, yes on a Saturday then 2 - 3 weeks after oncology want me to go for mask fitting and to crack on with radiotherapy.  Hell of a lot going on at once but at least there is aplan in place.  Also said they would sort out transport for the radiotherapy as my family has run out of holiday the ammount of time i have spent backwards and forwards this year.  Fingers crossed that we will start getting on top of it at last.  Main worry at the moment, the biopsy was my eye which has grown again, worried i might lose my left eye as it is right in the corner, just above where the next radiotherapy is going to be done, which also overlaps the lip they did earlier in the year, oncologist called me Thursday to explain plan and to say it has to be another 4 weeks because they need to go slow due to the skin flap and overlap.  Didnt sleep a wink last night so probably go for a snooze in a while just had some soup but hard to eat as new skin graft on right side of lip and still got numbness in left side from radio and surgery to base of nose.  Bit battered but hanging in there.

Keep well all

Mo

Thanks for the update MO. Keeping everything crossed for you.

Jon

Hi Mo

Sounds like they have a plan and are cracking on with everything which is good.

Glad you've got some transport sorted too.

Have a good rest and a gentle cuddle with that big beast Sherman.

Linda x

Thanks for letting us know what’s happening. We are all paid up members of your fan club here, Mo and were all shouting for you. 
You must be so tired of all this yet you plough on. You’re an inspiration. So keeping my fingers crossed all goes well. 

Hi Mo Your ability to bounce back astounds me. So pleased you have a plan in place.mYour title Here we go Round  the Mulberry bush was apt previously but  even more so now.Rest as much as you can and will have everything crossed for you and your family ,Tell Sherman he has to be good for his new dog walker ,and his mum will soon be taking him out.Do you have the Ensure Hugh calorie food supplements or am I right in the king yiu can’t take them .

hugs Hazel x

Well had a call today surgery on 12th cancelled.  i am fuming, said they had no anaethetist but think they gave my slot away cos they offered me this week then realised its too close to last weeks surgery so cant happen.  Now looking at a different surgeon probably the janitor knowing my luck.  real cross because we could have got going with the radiotherapy.

grrrr

Oh....sorry Mo they are messing you about. I hope you get something soon

Oh no Mo that’s so unfair ,cant you get in touch with your consultants secretary, or Macmillan nurse. 

Really hope you get something sorted Hazel x