Anxious

FormerMember
FormerMember
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I was told that I have a tumour in my nasal cavity last Friday. My symptoms had been that my left ear kept blocking. I thought I’d be given some ear drops so I came out of the office she’ll shocked.The information that I was given is that I will need an MRI scan and a biopsy. I have to go to the hospital tomorrow for a pre op assessment before the biopsy takes place. I was told that all this will take place within the next 3 weeks. I have been reading lots of things on internet and I am beside myself with worry so much so that I have lost my appetite and feel nauseous all of the time. I’m also very tearful. I know that I’ve got a massive journey ahead but I just feel so frightened. Can anyone tell me about their treatment and how you’ve coped please.

  • Good evening Fafferty1, sorry to hear you have a tumour in your nasal cavity, I'm afraid you have made the mistake most people do, that is to go online and look up your symptoms as it is so misleading. Nobody knows what lies ahead until the biopsy and scan have been done and they will then give you a treatment plan which could be a mixture of an operation or radiotherapy and chemotherapy, ie they might just treat you with the radio and chemo first and see what happens or they might just go for an operation. You never know the tumour could be benign and cancer-free, let's hope it is. Please do not get upset as you are in good hands and will be well looked after by the N.H.S. If it is cancer, the success and recovery rates are very impressive. Try and put it to the back of your mind by keeping busy until the appointments come through, I can assure its nothing as bad as what they say online. I'm sure you will get some lovely kind replies on here during the week, please let us know how you get on with the scan /biopsy. Wishing you all the very best , take care.

                                                                                 Chris x

    Its sometimes not easy but its worth it ! 

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  • Hi Rafferty. 
    sorry to find you here but it’s a good place for help and advice. 
    Chris has just about said it all. 
    I would like to add that you seem to have hit the diagnostic trail running. This is a good thing because speedy diagnosis and treatment are the key. From self diagnosis to beginning of radiotherapy took four months for me and I’m still here Smiley
    “Try not to worry “ is like suggesting you don’t breathe so busy yourself with other things and see if doc might give you some mild sleeping tablets so you at least get some rest. 
    Stay off Google and certainly ignore stats which are all out of date. 

    if it is cancer have a look at my blog and good luck with all the tests. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to chris2012

    Thank you x

  • FormerMember
    FormerMember in reply to Beesuit

    Thank you x

  • Hi Rafferty1

    Sorry you find yourself here but a great place to be for some good advice and support.

    It can be a scary time where you havn't been properly diagnosed and no treatment plan is in place - the imagination runs riot.  Looking up symptoms and outcomes on Google only makes it worse.

    There are lots of us here who've undergone similar treatment plans and come out the other side.  The prognosis is so much better these days.

    Personally I found it much easier once I'd spoken to my consultant and discussed a treatment plan.

    Good luck with your pre op assessment today and the biopsy.

    Take care.

    Linda

  • Hi Rafferty can only echo what the others have already said ,please keep off Dr Google. The indormon there isn’t regulated anyone can put anything in unless yiu have medical knowledge  know where to go keep off the statistics are way out of date . There’s lots of us in here who have so to speak been there done  it got the t shirt ,and come out the other side. From first trip to drs for me 14 May 18 to treatment starting was 62 days in which time I had mri cat scan biopsies mask made met oncologist wonderful guy treatment discussed.

    I am now 18 month post radiotherapy for tonsil cancer with affected lymph nodes and am living my life .

    good luck keep in touch 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to LindaWT

    Thank you x

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank you for your feedback Hazel

    Can I ask how you coped with any side effects of the radiotherapy please? xx

  • Hi the side effects can be challenging to say the least , although not everyone has the same ones ,the major ones are because if where we are receiving treatment the mouth and throat/neck area involve  eating and drinking .Many but not everyine have a peg inserted in tummy prior to treatment ,or in my case I had to agree to a nasal feeding tube which I had in week 4 . Radiation burns to skin ,tongue and ulcers  it all sounds horrific but as yiu can see in here many of us come through it and now 18 month post radiotherapy am living my life 

    I have a warts and all blog detailed below wher I detail my experiences and also links to other blogs and trusted Throat cancer site s feel free to browse .

     Ow my main side effect is lack of saliva it is getting better slowly whether ut ever becomes what it was time will tell,Plus various meats and fish along with leafy veg and some fruits mainly citric are difficult to swallow.

    hope this helps

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank you x