Misdiagnosis

I had a hard lump in the right side of my neck for about 8 months and thought it was a swollen gland. Because it didn't go away I went to my GP and she referred me to the ENT dept. at our local hospital.  I had 2 biopsies (both came back as fatty tissue) CT scan and an MRI scan. The consultant said that although the biopsies came back as fatty tissue, the area a fine needle biopsy gets can easily miss cancer cells and that he thought it was cancer and that the MRI scan had shown activity on the base of my tongue as well. He said whatever it was, it needed to come out and booked me in for 14th June to remove the lump.  I was called on the 10th June saying (after a team meeting) the op was cancelled  because they wanted me to have a PET CT scan. After the PET CT scan I was passed to another consultant. He said although the biopsies did not show cancer the PET CT scan showed "very nasty activity" in the base of my tongue and surrounding throat which he believed was the primary cancer and the large lump (with a smaller lump next to it) was lymph nodes "doing their job in catching cancer" as a secondary cancer.On 20th June I had robotic throat surgery (pan endoscopy, base of tongue mucosectomy and tonsillor fossa biopsy) and a full right neck dissection. Recovery has been awful. I am having speech therapy because my tongue has been damaged, my throat is still very swollen and sore. I have pain in the side of my head and back of my nose. I have palsy on my bottom lip. I can only taste salt because they burnt my tastebuds and my teeth have been damaged. I have a scar from the bottom of my ear to my collar bone. The side of my head, my ear and scar are still completely numb.I have a very weak shoulder because they cut the muscle in my neck and damaged nerves there. My shoulder is also very painful now and is about 3 inches lower than my left shoulder. I could accept all this because it was necessary to save my life but when I went for the results I was told that I do not have cancer at all, anywhere, and that the lump was not even a lymph node! They said it was an epidermal inclusion cyst. which is a sebaceous cyst! I am very angry and cannot believe I have been through major cancer surgery unnecessarily. If they had just taken the cyst out and sent it to the lab I would not have had to suffer the pain, the panic of not being able to breathe or swallow or eat. I accept I would have had a scar and some discomfort having the lump removed and that's fine but I have had all the lymph node removed in the right side of my neck and they were all healthy. I now have lymphatic fluid build up in my neck and feel like I have a tight strap around my throat because there is nowhere for the fluid to go. I am in numb disbelief and can't understand why they did not investigate further to identify exactly what the lump was before opting for major cancer surgery.