Tiredness

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Does this lethargy get any better?

I’m 6 months down the line from RT. 

Although retired I’m trying to get back to normal. Hobbies.... we keep bees and it’s a busy time of year. I have got full time back into the kitchen after husband took over when I was ill. I haven’t much heart for cooking which I used to enjoy as my taste is all over the place. I enjoy gardening and there is stuff to do in the polytunnel. Trouble is I get so tired so easily. Am I expecting too much too soon? It’s driving me crazy. 

  • It might well get better but I still get it after 4 years, just have a nap when you need it. I am glad I am retired as well so I don't have to try and do so much.

  • Hi Beesuit

    I'm almost a year on from the end of my treatment and I still get extremely tired but not as bad as I did at 6 months - I don't think.

    I say that because a few changes have been thrown into the mix.  Firstly I had to learn to pace myself.  I've found I can spend some time doing light jobs in the garden but then need a period of rest before attempting more jobs.  Also time of day makes a huge difference for me and how much fuel I've digested.  I was also diagnosed with hypothyroidism and have been on medication for over 2 months although that doesn't seem to have made any difference to any of my symptoms.  So whether my feeling of slight improvement is a mixture of all those things or whether it's just due to recovery I can't say.

    My team are constantly telling me recovery generally takes a year to 18 months so I've still a way to go.

    All the best.

    Linda 

  • Hi Beesuit, 

    I totally understand your frustration at the moment caused by lack of energy. I’m also nearly one your out of treatment like Linda and I still experience fatigue on a daily basis. It rarely lifts and it’s unpredictable. 

    I agree with Linda that it helps to pace activity throughout the day and take breaks in between. Be careful not to overdo it when you feel a bit better. I’ve found I pay for it the next day and it takes longer to recover if I push myself too much. 

    Are you sleeping ok? One thing I read recently about fatigue is that the most important thing is to get a good and unbroken nights sleep (easier said than done sometimes  I know) it sounds so simple. However, when I thought about it seriously I acknowledged that my sleep is nearly always broken and I’m usually awake several hours during the night. 

    Anyway, I’m going to ask my GP for some sleeping medication this week in an attempt to get a full 8 hours sleep per night. I’ll let you know how it goes 

    Good luck in your Poly tunnel in this heat and best wishes 

    Carrie 

  • Hi Beesuit , you are heading in the right direction as you have managed to kick your husband out the kitchen Slight smilebefore you know it you will gradually find yourself in your polytunnel. Im back to doing most things I done before but it just takes that little bit longer so I just allow extra time and take rest when needed. I used to cook a lot at weekends to give my wife a break trying new recipes oriental , indian ,etc but since my cancers I have stopped doing it , mainly , I cannot eat , smell , or taste food the way I used to so its taken  the enjoyment out of it . But im sure your taste buds will improve and your appetite . Take it easy my friend ,all the best .

                                                                                                  Chris . x

    Its sometimes not easy but its worth it ! 

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  • Thanks Chris and Missfitz

    A little encouragement and assurance that it's normal goes a heck of a long way

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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