Mask sorted

Hi, Martin, well done getting the mask done, that's another step forward and after getting the PEG fitted, like you say you will be good to go. Good luck for the 25th. if you have any worries just ask your team they are always happy to answer any questions and to put your mind at rest. Always ask away on here also, someone will always come back with an answer if they can. Best wishes to you.

Regards Ray.

As others have already said the time will fly past. My wife is just finishing week 4 of Radiotherapy with the 4th session of Chemotherapy done today.

Have to say the weekends can seem to drag a little but it's so busy during the week that before you know it you'll be halfway through.

Fitting the mask is the easy part remember you  have to keep it on in a confined place for up to ten minutes with a very lot of noise buzzing your head. Maybe someone can explain to me why it makes such a huge noise. . They could make a lot more holes in it and it would still be a tight fit. You will be very lucky if you get started on your chemo in less than a two hour wait and sometimes a lot longer. No one has yet given a good reason for it. The nurse hardly sees you while youre having it. Always take with you  painkillers, the hospital wont give you saying they have to ask the doctors permission which can take hours of being in pain.  Have a walkie talkie while having the radiation and ask the nurse to tell you the time every two minutes. There is no reason why there cant be a clock in the room for you to see. 

You appear to have had a bad time with radio seeker1, I'm glad my experience was nowhere near as bad though I did have some long waits mainly because it was a very hot June July and the machines kept overheating, apart from that the worst part was the traveling.

Hi Martin, no mask for me yet, seems I’m a couple of weeks behind you, I have  a treatment start date if the 5th August. Will be watching your posts closely 

Get them to cut eyeholes then you can watch the machine go  round you. You can see the metal leaves change shape as it moves. It makes the time go faster and you won’t panic. 

I just got a bit fed up with it on the last week when though I knew it was making me better it was also making meme feel really rubbish. I couldn’t look it in the eye so closed mine. 

Hi kay,

Yeah I had 5th August in my mind with one thing or another, but start on 25th with one blast of chemo that week and then again week 5,just waiting on PEG now 

Have read radioactive raz blog on here very good with what to expect also a lovely chap on cancer uk ian goes under Anchor1707 equally good 

Don't know if you come across them yet  but a great comfort to me, knowledge is power so they say ,always have a quick read in the morning with  a coffee before I  start  work!!

Hi,

metal leaves ..? sounds like something out of stargate !!,no one mentioned regards eyeholes but might look into that when I start

cheers

Hi Martin,

on 5th August I will have chemo first then radiotherapy after, so will spend most of the day in hospital. I will have chemo every Monday for the whole six weeks as long as my blood count stays healthy, although they have said not to worry if I don’t get more than 2-3 sessions it’s the radiotherapy that is the main treatment. I have a pre-treatment date if the 2 August where they will give me the full time table, but no dates for PEG or mark fitting yet. 

Hope all is going well with your wife’s treatment, my husband is starting chemo radiotherapy on Monday so we are both a little anxious right now! Just wondering how things are going re side effects so far at week 4 , I have read a lot and know everyone is different but just wondering what week 3/4 might be like from someone who is there right now.

hope things go well with the rest of treatment!

L