Hi
Re husband. Well had the MDT meeting last week and after tonsillectomy v small cancer found in tonsil T1N3MO. Plan radiotherapy to both tonsil areas and lymph node for 6 weeks and recommended RIG prior to this and dental assessment tomorrow. Really scared about all this - husband reluctant to have the RIG ( dietician didn't think NG tube appropriate as we live 50 miles from hospital.,) He is also dreading they will recommend extracting teeth ( always looked after them). Its all getting very real. He "just wants to get on with it," but I feel so sad, worried and helpless. Has anybody had a RIG fitted if and when needed,? Any advice welcome. Thanks.
Hi
my only advise if medical people are telling you havevthe rig I would go for it. WE live 25 miles from hospital and I had nasal tube week 4 as they thought I would mmaintain eating but was too hard to eat enough. My daily car journey was just about manageable wouldn’t have wanted much longer. Remember it’s there but u don’t have to use it try and eat as long as u can but it’s rare for them to do the rig during treatment. Just look at it as a friend that’s there if u need it.
i was t2N2 no which they down graded to t1 as h p v 16 +
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi, madaboutmutts, I would advise your husband to have the RIG fitted, lots of other members on this forum have had them and been pleased they have, including myself. I was totally reliant on mine for about 10 weeks, it was a real lifesaver for me. The way I look at it is, it 's better to have and not need it , than to need it and not have it. All the best to you both.
Regards Ray.
Hi madaboutmutts
If your husband's medical team are recommending the RIG then I would definitely encourage him to have one. I had a PEG, which I believe is similar, and I wouldn't have wanted to be without it. I had about 6 weeks when I couldn't eat at all and when all I could manage to drink were tiny sips of water. The PEG/RIG really helps with making sure we stay properly hydrated and nourished. They can use it for liquid medication too. I had a good recovery, albeit a slow one, and looking back on it all I'm convinced the PEG had a lot to do with it.
Best wishes to you both xx
Hi madaboutsmutts , I would strongly recommend the peg/rig to be fitted in fact I beg for him to have one , mine was essential to my recover . I also had to have teeth removed and just let them do what they thought was best so the treatment was effective . Please don't be sad and helpless because just being there for him is a massive support . So on the whole I agree with the other guys who have posted . Best wishes and hope all works out ok , take care .
Chris x
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