Tonsil cancer

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Hi

Re  husband.  Well had the MDT meeting last week and after tonsillectomy v small cancer found in tonsil T1N3MO.  Plan radiotherapy to both tonsil areas and lymph node for 6 weeks and recommended RIG prior to this and dental assessment tomorrow. Really scared about all this - husband reluctant to have the RIG ( dietician didn't think NG tube appropriate as we live 50 miles from hospital.,) He is also dreading they will recommend extracting teeth ( always looked after them). Its all getting very real. He "just wants to get on with it," but I feel so sad, worried and helpless. Has anybody had a RIG fitted if and when needed,? Any advice welcome. Thanks.

  • There is another thread about the Rig PEG that should answer your/his worries (I think they are the same thing) and it is a godsend as nothing likes to go down after a couple of weeks of radio.

  • Hi

    my only advise if medical people are telling you havevthe rig I would go for it. WE live 25 miles from hospital and I had nasal tube week 4 as they thought I would mmaintain  eating but was too hard to eat enough. My daily car journey was just about manageable wouldn’t have wanted much longer. Remember it’s there but u don’t have to use it try and eat as long as u can but it’s rare for them to do the rig during treatment. Just look at it as a friend that’s there if u need it. 

    i was  t2N2 no which they down graded to t1 as h p v 16 +

    hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi, madaboutmutts, I would advise your husband to have the RIG fitted, lots of other members on this forum have had them and been pleased they have, including myself. I was totally reliant on mine for about 10 weeks, it was a real lifesaver for me. The way I look at it is, it 's better to have and not need it , than to need it and not have it. All the best to you both.

    Regards Ray. 

  • FormerMember
    FormerMember

    Hi madaboutmutts

    If your husband's medical team are recommending the RIG then I would definitely encourage him to have one.  I had a PEG, which I believe is similar, and I wouldn't have wanted to be without it.  I had about 6 weeks when I couldn't eat at all and when all I could manage to drink were tiny sips of water.  The PEG/RIG really helps with making sure we stay properly hydrated and nourished.  They can use it for liquid medication too.  I had a good recovery, albeit a slow one, and looking back on it all I'm convinced the PEG had a lot to do with it. 

    Best wishes to you both xx

  • Hi madaboutsmutts , I would strongly recommend the peg/rig to be fitted in fact I beg for him to have one , mine was essential to my recover . I also had to have teeth removed and just let them do what they thought was best so the treatment was effective . Please don't be sad and helpless because just being there for him is a massive support . So on the whole I agree with the other guys who have posted . Best wishes and hope all works out ok , take care . 

                                                                                                    Chris x

    Its sometimes not easy but its worth it ! 

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