Hi everyone
So i had my peg inserted yesterday pending starting chemoradiation on Monday.
It was a really difficult day yesterday (for a number of reasons) and whilst I knew it would be sore, I wasnt expecting it to be this bad!!!
I'm really struggling getting from lying to sitting/standing due to pain. Was just wondering if anyone else who has had a peg could tell me when their pain eased/went and when they started to feel normal?
Thanks in advance
Kelly xx
Kelly I feel your pain, I had an excruciating second night when I was let home because the first in hospital was well managed painwise. I got complacent and went to bed without taking enough meds and woke in the middle of the night in agony, my wife got up with me but I was crying with it for an hour or more until the pills (that I should've taken before bed) finally kicked in.
Really pleased to report that it very soon went away, it was a day or two at most before I hardly knew it was there.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hello Kelly, so sorry to here this as I always tell people that it is quite a pain free procedure , maybe Im one of the lucky ones as I have had two fitted and did not have any problems , its still in to this day . All I can say is take MikeO advice with the pain killers. Hope all settles down in the next few days , take care.
Chris x
Its sometimes not easy but its worth it !
Kelly just to reinforce the pain killer thing I just read back how I recorded it in my blog...
"Was lucky that any pain was controlled just by ibuprofen [one overnight stay as in patient] when apparently some people need morphine and several nights as an in patient to get it sorted.
Had to wait until 2.00pm to see a dietician to show me how to clean and flush my new appendage (I like to think of it as a piercing with attitude) which is all I have to do until such time as I need it but then they let me home.
Home....hmmm....over confidence or nonchalance maybe, went to bed Friday night without bothering to take any pain killers because it was a breeze, right? Wrong in spades! Woke up at five in indescribable pain, I say indescribable but I did in fact describe it in many and varied four letter words (few of which were "ouch"). I woke Deb, took two co-codomol and cried on her shoulder on the settee for about half an hour before it eased off. We had a deep conversation during this time which consisted of me saying "Sorry" and her saying "Stop apologising!"
Anyway, the lesson learned from that is always to play on the safe side with drugs....if you're prescribed them, take the damn things."
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
