Cancer right tongue base

Hello Nele, I would have thought radiotherapy would not be done if you have had it before but chemotherapy can still be used which is normally a course of treatment that is done in hospital, you are normally in most of the day. , sometimes they put a line in that is connected to a ball ( i think ) so you don't have to stay in for the day, this ball/vessel contains the chemo and can be administered while you are at work, home etc until the course is finished. I had three doses but I was in hospital to have mine done. I believe there are other new treatments but I'm not sure what they are. They might also offer more surgery. Best wishes, take care.

                                                                                    Chris x 

Hi Chris 

Thanks for the responce 

Could I ask if the chemotherapy made you unwell  please 

Sorry to ask just like to prepare myself

Nele x

Hello Nele, the chemotherapy did not make me unwell as such, I suffered tiredness and fatigue which are the most common side effects but did not feel nauseous (sickness ) which can happen. No need to apologise Nele as I would rather you ask questions on here rather than googling it as it can be misleading in many cases. Best wishes.

                                                                                            Chris x  

Thankyou so much Chris 

I avoid google search as know they are not the best place for answer 

Feel much more at ease from your response, very much appreciated 

Helen x

No worries Helen , hope all goes well for you.

                                                                            Chris x

Hi Nele,

My situation is a little different from yours in that I have had no break in treatment since first diagnosed in Oct 17. I think I’m probably qualified in terms of treatment options though as I have tried everything that my team and 2nd/3rd opinions have put forward!

I think the big change since mid 2000s is immunotherapy. I’ve had a couple of goes at that - first time was a general treatment and the initial response was nothing short of amazing. It cleared up multiple distant metastises almost immediately. Unfortunately immunotherapy can stop working as quickly as it starts, which it did, as it started growing again in my neck. My next go at it was a trial, which included immunotherapy. This continued to keep the distant stuff at bay, but again the problems in my neck would not respond so I was taken off the trial. Now back on chemo, but in the knowledge that it’s no cure. Looking into more trial options.

So my suggestion if it has returned is look into immunotherapy. Good luck and hopefully it will work for you. 

Colin

Hi colin

Thankyou for replying and the advice, never heard of imunotherapy, Good to know there's other treatments.

Good luck to you and your treatment path hope all goes well 

Helen