Update

The waiting is awful isn't it, but at least you've had some positive news now. All the best to you both, I hope his treatment is successful. x

Waiting is the worst, they've said his cancer is treatable but not curable and immunotherapy is the best treatment to have for good results,we can only hope it works x

Hope everything goes well

Hi

I was diagnosed with inoperable S4 oesophageal cancer in March 24. Oncologist in Brighton gave me 6-9 months. Managed to get on a trial at UCLH where I would be given chemo and immuno (nivo)

After 4 months I was in Complete Response with some side effects including loss of appetite and neuropathy. This continued for another six months or so with the cancer arrested. In total I think I had about 15 cycles with a few breaks.

At this point some concerns arose about heart problems. Diagnosed as AF (I’m a reasonably fit 77) Thought was this might be exacerbated by the immuno. So stopped and continued with chemo. Scan in Sept  25 showed some progression in liver. 

New course of chemo (paclitaxel) Hair loss. Jan 26 scan showed further progression in liver. And so came to the decision to give up treatment and enjoy life. I was given 3-6 months.

As of today I feel completely well. No pains, health issues of any kind. No tiredness. Life as normal - dog walking, gardening, cooking ( have regained tastebuds and appetite.)

So enjoying family life to the fullest. For how much longer? Who knows?

Best of luck to you all

David

Hi David 

I'm sorry that you've had to stop treatment but you seem to have a positive attitude towards things and are enjoying life as much as you can,this disease destroys so many lives and thank you for your kind words and I wish you all the best 

We have an appointment this week to discuss treatment options as they have said it's treatable but not curable and due to my husband already having had throat Cancer 8 years ago he can't have radiotherapy or another op so we'll see what the consultants say , he's being fed through a tube in his nose and is waiting for a rig to be fitted , he's getting a bit fed up of not being able to eat or drink and missed his few cans of lager on his 65th birthday last month, hopefully treatment will work and he'll be able to have a belated birthday meal and a pint 

All the best 

Jenny

All the best. Hope he can enjoy a pint or two! 
David

Thanks, he's a long way off having a pint or 2 but hopefully soon, 

We have appointment tomorrow to discuss treatment plan and when it will start, hopefully soon so we can get on with it , the waiting seems so long and drags on

Jen 

My wife was diagnosed Feb 2024 with stage 4 Oesophageal cancer,no surgery as spread to lymph nodes and pelvis.She had 8 cycles of capox together with pembrolizumab and when the chemo finished she continued with pembrolizumab every 6 weeks.Her first scan after starting treatment showed a reduction in the tumour and her scans by the end of 2024 showed not detectable signs of cancer.She finished her treatment a few months ago and will be monitored every 3 months with blood tests and scans.

I️ hope your husband's treatment goes well.best wishes.

Thank you so much for lifting my spirits! 

I was diagnosed in January, and sadly it had spread a little bit. After that, I was having difficulty eating and drinking, in fact my wife was putting all my food through the liquidiser.

I have now had 6 doses of chemo, and can eat any meal as I used to before the cancer. So I am confident that the tumour has shrunk.

But we are only as good as our next scan, which I 
had this afternoon.

Fingers crossed, eh?

Hello Kaya

Thank you for your reply it's appreciated, it sounds like your wife responded well to treatment I'm glad things are going in the right direction, it's positive news like yours that really helps as it's going into the unknown that's hard,

I Wish you both the best 

Jenny x