Hi first time on here, I had my Ivor Lewis operation on the 1st October 24, have finding it hard and slow recovery, have started to get lower abdominal cramps does anyone else suffer with this and also acid reflux at night, have changed few foods and how much I have,
14 yrs Ivor Lewis lower abdominal/ cramps you will get as your body has now been changed by surgery I still get them now just try and relax they will get less frequent as for reflux that’s horrible even I don’t they will go away completely ever, my advice to you is stop eating by 7pm try 5ml gaviscon after each meal and before bed also take your omerprzole morning and night as I do, after 7pm liquids only and eat a normal foods but only a quarter of what you used to have every two hours it is trial and error don’t eat too fast that’s when you get dumping syndrome good luck
Hello, I had. My procedure on July 22,2026, I eat a quarter of my food and I can't get used to this. Cramping and pain on the right side and back unbelievable. The chemo after my surgery is making me so sick, I have 2 more rounds and I don't know if I can do it. Any advice would be greatly appreciated. Thank you and God bless. Michael J
Good morning Michael. This may be totally irrelevant, but I had painful stomach cramps for months. In fact ironically it was the cramps that led me to having a gastroscopy, which revealed the cancer. However the cramps were unrelated to the tumour, they were caused by excess stomach acid. The oncologist prescribed Omeprazole, one tablet per day, and within 2 or 3 days, the pain was completely gone, and has never shown even the slightest sign of returning.
Might be worth a try.
Best wishes,
Geoff.
Hi Michael,
I presume by “procedure” that you are referring to a Ivor Lewis oesophagectomy? If so, you really are in the very early days of your post surgery journey. If you are struggling with your chemo, you can always discuss with your oncologist about reducing the strength. I did my 4 cycles of pre-surgery FLOT at 100% strength but, when it came time to start my post-surgery FLOT I knew I couldn’t cope with this and, in discussions with my oncologist, had it reduced to 75% strength which was more manageable. I also stopped after 3 cycles as I’d just had enough by then and wanted to start getting better. Things will get better for you but it will take time and patience is required. This is a very major operation and recovery from it is measured in months and years. Talk to your oncologist and hang on in there. Best wishes
Cool Blue
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