New to forum. Just started FLOTS before surgery..... UPDATE now switching to chemo-radiotherapy pathway.

Hope everything goes well for you. 

Thank you HerfordWolve18d781.  My best wishes for you.     

Hi - welcome to the forum. Sorry that you have to be on here but this is a great source of information that you can tap in to. Don't be afraid to ask as there is alot of knowledge in this group.

I went through FLOT and an oesophagectomy approximately 4 years ago now. I have put most of my 'story' in my profile which may give you some idea what to expect but, to be honest, it appears that everyone's journey is different.

I hope that the FLOT is going well and not causing too many issues. My experience was that I could predict how I would feel each day through each cycle which allowed me to prepare and organise myself around those days when I knew that I would feel rough.

Hi.  Thanks very much for your reply.  4 years after FLOT and Oesophagectomy brings just the experience I was hoping to find.  I will read your "story" and most likely come back with a few questions. 

I like the idea that I might be able to predict how I might feel each day based on the previous cycle(s). Tomorrow cycle 2 begins and I feel a little daunted based on days 2 and 3, based on the experience of cycle1.

I hope that post chemo-op you are continuing to enjoy good health.

Thanks again.   

As an update, I have now had time to evaluate the double op option, and have decided that I will follow the pathway of chemo-radiotherapy and hold the operation in reserve.  I may be offered immunotherapy as another option post chemo-radiotherapy if need be.  

Hi again StrongerNow. I've now read your story and... WOW.... well done and keep it up!  Your story is truly inspirational.  Thanks again for getting in touch.