Husband just started treatment

I was the same as your husband after the diagnosis - while my wife did lots of research I basically told her I didn't want to know. I decided just to deall with things as they happened. Not sure that it made any difference to be honest!

Although I did not have many issues with the FLOT chemo there are always side effects. I found that they felll in to a regular pattern throughout the 2 week cycle which allowed me to plan for the good and bad days which helped as I could plan around it.

From reading the forums (which I have only done recently - almost 4 years later - it is obvious that everyone's body reacts differently to the FLOT so you will both have to see how it impacts him.

Hopefully he will cope with the second course better than the first.

Yes, we're hoping it will be better. I think the first couple of uneventful days lulled him into false sense of security, but we'll be more prepared for what might happen next time around. His consultant says the dose will be reduced to 80% of what it was the first time so that should help too.

I totally understand him (and you) not wanting to know too much about what lies in store, but for me forewarned is forearmed. I'm hoping I'll cope better if I know what to expect. That's the theory anyway!

Hi SupportingRole 

Thanks for joining and sharing here, I fully understand why you would want to be made aware of everything and everything, I was exactly the same, but it is really important to remember that no matter how good the oncology team are, they are offering best guess information based on statistics. 

It is fantastic to read that your husband has been told that his OC is curable, and they will do everything in their power to move quickly to ensure it stays that way. 

I also did a lot of research in the early days when my husband was first diagnosed, sadly for him, he was never curable, just treatable, which was something, as the treatment well surpassed their expectations and gave us many additional years together, but for you guys, cling on to the positives and just know that everything they offer will be with a view of eradicating the OC 

Best of luck 

Lowe'

HI Sorry you find yourself here, I was the same my partner, he didnt want to know what was happening and just got on with it, me on the other hand I wanted to know every single thing and researched so much.  When he got ill several times I felt I was able to know weather he needed hospital asap or just to ring a nurse or even if it was something I could do at home,  I found this helped me so much and he didnt mind that I knew more, I do think it helped us in the long run so i would say if you want to know just do your own research but dont tell him everything at least you will be more prepped to help when the time comes.  Wish you all the best x

Thanks for your message. Hubby's second chemo session is on Tuesday and he's getting a bit apprehensive but knows it must be done. His consultant has prescribed something which will hopefully help with the abdominal pain he experienced last time. I know the 'cure' is not guaranteed but the possibility of it it does help us to remain positive.

Thank you. Don't worry - I don't tell him everything, or anything really, unless it's relevant to the immediate situation. I rang the hospital helpline for advice a couple of times after his first chemo because although he was having problems he was reluctant to call them. (Just as well I did, since the second time they said he needed to come in for treatment.)

The other day he had a slight bleed from his PICC line and he rang the helpline himself, so that's progress! As I've reminded him more than once, that's what they're there for. I think he has now taken that on board so I'm a bit reassured that he'll ask for help if he needs it.

Onward and upward, we hope!

I hope everything goes as well as it can do today 

Lowe'

my husband was diagnosed a year ago rather badly by undiplomatic specialists saying it was not curable.  Well here we are a year later in remission.  

Yes it's brilliant in fact a day later he broke his leg in the shower and we are now in hospital with that and that's causing more discomfort than the previous year - we hope for a change in luck !

Of course theres been many a winding road side effects mainly fatigue, weight loss, loss of appetite. I think positive thinking has been key.

We were offered the Pic but decided no it's a personal decision.

Our Oncologist has always been our lifeline and motivator adjusting and listening to our journey and we will always be grateful to him.

Keep with it

lots of love