Husband just started treatment

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Hello everyone. My husband (who is 69) was diagnosed with cancer of the gastro-oesophageal junction at the end of last year. We've been told it's curable and he's recently started his pre-op FLOT chemo. He was fine for a couple of days but then had quite a few problems - first constipation, then the opposite. With the benefit of a hindsight we were a bit slow in dealing with these symptoms, resulting in him spending 24 hours in hospital on a drip a few days ago and leaving with potassium tablets and a course of antibiotics. I feel that I let him down in not realising how unwell he was. His second chemo session was cancelled to allow him time to recover.

I have done a lot of research about the treatment and it sounds pretty daunting. He prefers the 'don't tell me until I need to know' approach, which is fine, his choice. From reading comments here I know he (we) have a long tough road ahead and am sure this forum will help.

  • I was the same as your husband after the diagnosis - while my wife did lots of research I basically told her I didn't want to know. I decided just to deall with things as they happened. Not sure that it made any difference to be honest!

    Although I did not have many issues with the FLOT chemo there are always side effects. I found that they felll in to a regular pattern throughout the 2 week cycle which allowed me to plan for the good and bad days which helped as I could plan around it.

    From reading the forums (which I have only done recently - almost 4 years later - it is obvious that everyone's body reacts differently to the FLOT so you will both have to see how it impacts him.

    Hopefully he will cope with the second course better than the first.

  • Yes, we're hoping it will be better. I think the first couple of uneventful days lulled him into false sense of security, but we'll be more prepared for what might happen next time around. His consultant says the dose will be reduced to 80% of what it was the first time so that should help too.

    I totally understand him (and you) not wanting to know too much about what lies in store, but for me forewarned is forearmed. I'm hoping I'll cope better if I know what to expect. That's the theory anyway!