New diagnosis of Gastro-Oesophageal Junction cancer

Hi Hannah, 

I'm sorry you and your family are going through this, like others I've read about on here who have also been diagnosed with oesophageal cancer they too had been previously fit and healthy, much like my dad was too. In the early days of initial diagnosis it's incredibly hard to wrap your head around what's happening and I also found the waiting to know what was going on the hardest, and of course your mind spirals to the worst places. Once we were told and had a plan of action we just focused on that and took one day at a time. 

If you have any questions at any time please post on here, I've found others to be helpful and compassionate. 

Emma

How you feel is quite normal as the previous contributer said. it's a terrible shock but there are many treatments and it maybe operable if not theres other avenues. my husband was diagnosed with stage 3 oesophagal tumour in the lining of the juntcion inoperable which terrified us but 9 months later is doing well albeit with side effects from chemo tablets but today had his 3rd review and told the treatment working so they hope to keep him on it for the 2 years when the immune system is fully loaded and reduce the chemo tablets from now.

there is light at the end of the tunnel, stay strong and positive as theres so many treatment plans now.  The sooner you see the specialist the sooner it can all start.

Wishing you strength and positivity keep busy that helps you are clearly a loving daughter.

Thank you Emma 

Like you say the worst part is the waiting. Hopefully Thursday will soon be round and we get a plan of action together. 
Im hoping surgery will be an option for him.

Thanks again for replying x 

Thank you for this - it really helped me feel a lot more positive. It is just a shock in the beginning but there is a lot they can do nowadays in terms of different options.

That’s really good news about your husband Wishing him and you all the very best. 

I am already feeling more positive after reaching out on here.

Thank you 

Hannah 

Hi Hannah, 

My mum was diagnosed this time last year, and has now had her last session of chemo, after 8 rounds of FLOT in total with an Ivor Lewis op in between. Previously fit and healthy, and a huge shock when she was diagnosed. Leaves you feeling very disorientated, but after the process gets started and you have contacts at the hospital you can begin to focus on your journey with all of this. Hardest bit is the waiting. Sending you strength, and if you ever have questions these forums are really helpful. One thing I will say is everybody's diagnosis is incredibly different, the circumstances wont always match up to googles predictions, for good and bad. Try not to let your thoughts runaway with you, and focus on what you can do when you know more xx