Waiting game

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Hi all. Been around for a few months now but first post. Husband was diagnosed with Oesophageal cancer in March, T3N0M0 and poorly differentiated adenocarcinoma. We think the tumour was around 5cm but not sure as they haven't given us a proper answer just the size of area they're treating. 

Not suitable for surgery so has just completed the chemoradiation treatment. He's an appointment with oncologist at end of October don't know what to expect from that. Follow up scan isn't for another 5 weeks or so after that.

He had almost a 4 month wait between diagnosis and treatment starting too and that was hellish enough. Now the waiting game starts again. Its all just a bit much. 

  • There's no point in seeing the Oncologist before having the scans as he won't be able to say much. I'd be pushing for a scan immediately 

  • Your husband has had exactly the same diagnosis as myself.  Followed by the same treatment. 
    if you look at my bio the timelines are similar too.

    My tumour was about 4cm at the start of treatment and I do know that if it had been any bigger than 11cm I would not have been suitable for radiotherapy. What I do not know is what the area of treatment was.

    wishing your husband the best outcome x 

  • A four month wait is well outside the NHS target for cancer treatment!! 

  • I agree.

    In my case treatment was delayed as the MDT took me down the pathway of surgery in the first instance. Time and NHS resources were wasted as I was booked in for fitness assessment and peritoneal wash only to deemed unfit for surgery due to underlying medical condition that was known about at the start. Only then was I referred to a Clinical Oncologist.

    The MDT did agree with my feedback that those unfit for surgery for pre-existing conditions should be identified and not be put through the mental anguish of delaying treatment. 

  • I got the same if it's controlled you can live for years

    Ok then good
    1. Thank you. His is at the bottom end of the oesophagus and within the wall of it not sticking out. They found it when they did an endoscopy for recurring sickness bouts, he's since been told he probably had silent indigestion.  He was also the same in that when he went for his mdt meeting they didn't want him to have surgery and he said no to it as well but yet they still put him for tests to see if he was fit for op!
  • His initial referral was 2 years prior but  never mentioned cancer until he had the endoscopy. It was confirmed end of March but eventually the MDT decided end of June what to do. Started chemo 2 weeks later. So they've got in under the 31 day target. But still a lot of wasted time when they knew he didn't want surgery because of a low % success for him 

  • Think they've to wait for the swelling to reduce before they can do that. But I will ask the question!