New diagnosis

Hi there, the waiting is awful and your imagination runs wild but try to sit tight until you’ve got the results as tumour may be small and contained as mine was when it was diagnosed in January 2022.  I had the chemotherapy and then the op which removed all the tumour and luckily it hadn’t spread anywhere and lymph nodes were all clear so fingers crossed too for your husband.   
Has he been informed of the size of the tumour? 

Hi. Sorry to read your post but you have come to the right place for support. Everybody here knows what you are going through. The initial news and then waiting for diagnosis has been I suspect the most difficult stage for all of us. Please do come back to this site when you have more information as there are many different treatment routes and you will be best guided by those who have experience of that chosen for your husband. So much depends on the detail of the diagnosis. I do hope things go well for you both. I was initially diagnosed 30 months ago and am now  living a perfectly happy normal life as are many others. 

Yes it’s a bit of a shock ! And the waiting for all the tests takes ages ! But you will find so many positive stories on here I was diagnosed last Oct had chemo then surgery in March and at the moment doing well ! Now awaiting another scan in October ! It has been a rough year but I’m still here ! I do hope you get results soon and get a plan ( I have put details of my journey on my profile ) Tricia xx 

I understand only too well how frightened and unsure you feel right now. I felt all those emotions when my husband was diagnosed late last year. I honestly felt like crying the whole time but realised I would be no help to him if I actually did that. The waiting for results is truly the worst time but is a little easier when a plan is in place. Try to make some time for yourself to do things you enjoy ….. vent your upset if necessary to friends or family you trust if that helps. There is a wealth of support here no matter at what stage your husband is diagnosed …… we will be ready to share our experiences and support.

Sending positive thoughts 

Geraldine

Your post really hit home to me . So similar to what I wrote at the beginning of September. This forum has been my biggest support , also made a very good friend.  My husband was diagnosed at 38 with stage 4 inoperable and put on a palliative pathway . Fast forward to June 2nd , due to his response from chemo and immunotherapy he had the Ivor Lewis procedure. He had his last round of chemo 2 weeks ago . He is having a  PET scan on the 16th September. He's now a healthy steady weight and eating and drinking fine ( much smaller meals than before)  he has also started counselling sessions (his mental health took a battering ) 

please know you're not alone , please do update us all.

Wishing you all the best ️

Tiff 

I think its 7cm that's what it said on his post endoscopy report we have a CT scan tonight and a follow up on the 17th it is going to be a really long week