Eight years on.

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Hi all,

Just wanted to post some positive thoughts for all you folks out there having treatment or recovering.

I had chemo and radiotherapy for stage 2 and then the Ivor Lewis op. The op was eight years ago this last April, age 58. I'm now 66. Side effects, if I can call them that, are limited and minor. I can't eat large amounts of food in one go. It's a bit embarrassing some times as a resturant meal or food at family occasions can be difficult to finish and I don't like people thinking I've not liked it. On the other hand, grazing is easy. Family often joke that I always seem to be eating. I still have my pillows propped up in bed, but invariably find myself laying flat with only some minor aches and pains for a short while after getting up. My favourite hobbies are photography and hiking. The hiking doesn't cause me any discomfort other that what everybody else would get. Lastly, it still feels a bit weird when hot or cold food goes down as the sensation is all on my right side.

Mark

  • This is fantastic to hear, my hubby had his op Thurs,same age as when you were diagnosed. Leaving hi. in critical care looking so vunerable then  reading this brings me more hope xx

  • It's especially tough for you, watching but not able to do anything else. But I know from my own experience that your support and love for him will be such a massive and important part of his recovery journey. 

  • Thank you so much xxxx

  • So true. I have always said that this  journey was far tougher on my wife than it ever was on me. I am 6 years behind you Mark but feel so lucky to be a survivor.

  • Did any of you have complications? He's having issues with his heart just waiting for hospital to call with info had scans on the middle of the night.So just sat here waiting to hear. 

  • I had complications but not heart related. I had a chyle leak and the doctors were unable to control my pain so I had to be anaesthetised and intubated. Spent 8 days in ICU as a result and another 8 on the ward

  • My husband had atrial fibrillation on day 3 post op. Apparently it’s something they watch out for as it’s quite common. He was on a drip to regulate the heart rate and some drugs for a little while when he came home but everything was fine. 
    Geraldine x

  • They think thats what he gas, doing more scans. he was moved on a ward but taken back to critical care. Have to wait till tomorrow to see him  so just feel so helpless 

  • I have atrial fibrillation, but I've had it for many years so it was on my records so to speak, for the duration of my treatment. I was taking daily beta blockers for it then and still am. I had no complications of note. I was in hospital for eleven days, which I think might be average for the Ivor Lewis op?