Hi everyone
I was diagnosed 7 wks ago with squamous cell carcinoma in my mid oesophagus. Had to have multiple tests still waiting for a plan. Just heard from nurse i will be getting a appointment to see surgeon and to have tests to see if im strong enough for surgery. Also still waiting for a biopsy off my shoulder which has been referred on to haematology. I have pre existing conditions. There primary concern is my pulmonary fibrosis due to scleroderma and lupus. Is anyone suffering with extreme digestive issues. I am finding it very debilitating. Extreme pain and discomfort and vomiting. Not much to come up because can't eat. Symptoms kick off with just a few sips of fluid. Been on omeprazole for 20 yrs.
Hi Style queen
I am sorry that you have not yet had a reply to your post but sometimes it can take a little while for someone in similar circumstances to see it and respond.
Welcome to the Online community.
I am sorry to hear of your diagnosis of squamous cell carcinoma in your oesophagus.
Having a diagnosis of cancer can feel overwhelming at times, especially when undergoing all the testing and waiting to have a treatment plan. I am pleased that the nurse has been in touch with you and an appointment has been arranged to see the surgeon. This would be a good opportunity to talk through your other conditions.
Have you been able to discuss with your nurse your current pain, discomfort and vomiting? If not I wonder if it would be worth contacting your GP for advice on how to manage this whilst you are waiting for your appointment. I wonder if it is worth asking about the omeprazole dose and whether there is anything else that could help in the meantime. With the current heatwave, if you are only able to take small sips of fluid that you need some support.
You could also give the Support Line a call and talk to one of the nurses. The Support Line is available from 8am-8pm everyday.
Hopefully someone who has had similar experiences will now see your post and offer some more specific advice.
In the meantime I wish you well and if there is anything you need, then you know where we are.
Jane
