Any advice would be welcom

Hi Worrieddaughter welcome to the forum. It sounds like things have happened very quickly for you all. Your mum might benefit from.being seen by someone from speech and language if she is having difficulty swallowing as they can test her abilities if that makes sense. I would speak to someone from your mums team as quickly as you are able to see if they can refer her and get someone to see her. Gailx

Thank you I was going to contact her nurses tomorrow so I will ask

Hiya worried daughter. I am in exactly the same position as you. My mum is 85 and was diagnosed in March. Since then she has had a stent put in but to be honest, it hasn’t helped much at all. Mum now can’t eat any solids and even liquidised foods make her sick. She had another CT scan on Friday so they can see what’s going on in her oesophagus. My uneducated guess is that the tumour has grown and pushed the tube/stent shut again. But I’ll wait and see what the doctors say when the results come through. In the meantime she’s living off soup and custard. I’ve bought her some protein drinks etc but she doesn’t like them. Mind you, she says she seldom feels hungry anyway…which is good in some ways as it would be torture to constantly feel hungry and not be able to eat but worrying in another way - why doesn’t she feel hungry when she’s effectively starving to death? All I know is that I worry about her every minute of every day now.  It is all really breaking my heart. So sending you hugs from one worried daughter to another. X

Thank you for replying and sending you huge hugs, my mum is amazing and being so strong but today she wasn’t going to come into a offer shop with us as she thought she may embarrass us with her having to spit up the spitty mucus. We knew she couldn’t eat but it was my sons, her grandsons birthday we were out for. We don’t care about any side effects that may happen, we certainly not embarrassed just want her with us as long as possible. Our next appointment is Friday and we should know about stent date and what’s happening in the lung. Let’s see what Friday brings. Xx

Again…I can relate and sympathise. Today I had my mum, kids and grandkids round as usual. I did a big roast and blended mums for her but she couldn’t keep it down and was sick. Afterward she cried and said she’d spoilt everyone’s dinner and wouldn't come round next week. I assured her it didn’t matter and that the children want to see her as much as possible.  No one is worried about her being sick except for the fact that it’s hard to watch her suffer.  I’m going to talk to the doctors about the possibility of having a J tube put in so that she doesn’t have to eat anymore. I’m not sure it’s feasible or even if my mum will agree to it…but I can’t bear to keep watching her struggle for much longer. X