Hello

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  • I'm sure I've done this before but can't find it!!

I'm in the final stages of oesophagal cancer having had not very successful chemotherapy and immunotherapy. I'm now released into palliative care which is currently being even less successful. My ability to swallow is getting minimal so I am unable now to take medicines except by injection or skin patch. Cant eat or drink and so have now given up as the palliative team dont seem be able to help more. I have no energy, stamina, muscle strength, no quality of life and an increasing fear of going on. Am hoping for a short hospice stay soon to close things.

  • Good morning I just wanted to send you my love and thoughts. I hope your team can help you in anyway that is beneficial to you. xx

  • Thank you so much x im staying positive that's all we can do i think as much as we possibly can 

  • Dear Mottie

    I think you are very brave to write about the last stages of this sad same journey that many of us are on. 

    It reminds us that whilst at the beginning we seek quantity of life over everything else, there comes a time when our goal is simply to have some quality of life. 

    I hope you are comfortable and not in pain and surrounded by love. 

    sending my best wishes x 

  • Dear Rosie

    I hope you are comfortable and not in pain and surrounded by love too. Sadly I'm currently anything but comfortable but pain is not great. I'm  now stuck for further relief until after yet another bank holiday!!

    I don't know if I mentioned it but my wife of 54 years has advanced pancreatic cancer. Our quality of life consists of keeping each other entertained and talking to family including grandsons who are scattered across the globe (we rarely see them). Also making friends laugh (though I can't last more than 30 mins before tiring). My wife also loves reading and (online shopping!!)  And I can still play piano for 5 mins at a go (where did my stamina go to?).

    I hope you have aspects of life which still bring you pleasure giving you motivation to go on a little more

    Very best wishes

    Mottie

  • Dear Mottie

    I am so sorry to hear about your wife. How you both are enjoying the life you have left is inspirational.

     My husband died 17 years ago from melanoma. I feel he is still with me to help me through my final months. He as you and your wife do, made friends laugh and at ease realising it is a difficult situation for them too. So I have his example to follow.  You sound very like him. I see as many friends as I can and we reminisce and I get reminded of things I had forgotten, and we laugh. 

    I don’t have any severe symptoms or complications of the disease yet. Other than the mental anguish that it is only a matter of time.  

    As for motivation, I am still hoping for quantity of life for it is bittersweet that my first grandchild is due soon. I won’t be able to chat to him or see him grow up so I spend my time writing a book about my life for him and any more grandchildren that may follow. 

    Take care x