I'm sorry if this is rhe wrong place to post this but I'm so lost and I don't know where to go from here. My husband was diagnosed with oesophageal cancer at the beginning of April after having an endoscopy late march, he struggles to eat and was put on a feeding tube, sessions of chemo worked wonders for him and he was able to eat some normal things again but still on the JEG tube. He had his surgery delayed after waiting 5 weeks for scan results which he was told he possibly had a chest infection so the surgery was CANCELLED not delayed! Weeks went by with no input from the hospital and despite is raising concerns regarding his eating again we felt like we was being fobbed off as if it was normal. He started struggling with his breathing and his oxy stats was pretty low GP confirmed this and he was sent to the hospital as they thought he had a blood clot on his lungs. Xrays showed fluid build up on both lungs left side worse than the right, he had this drained but within a few days it was back again and also a diagnosis of lung cancer too. He was given 12 months to last only 3 weeks! He passed away peacefully with myself and his mum holding his hand. He was 49 years old. I do blame the hospital for his delay in treating him taking 5 weeks for a scan result one hospital had actually said it was clear nothing showing on the abdomen as they thought it spread there never mentioned anything about his lungs. He was treated absolutely disgusting like he didn't matter! The macmillan staff was amazing and when he arrived at the hospice 12 hours prior to his passing they treated him with the upmost dignity and respect. I miss him we got married in the hospital 5 days before he passed.
I am so very sorry to read this and my heart goes out to you. I hope you have family and friends who can support and care for you as you come to terms with your loss. I am happy you were able to marry …… my partner and I have also just had a tiny wedding as he also has OC and the future seems less than certain. Sending love 
Hi Whitesdemon,
It must have been very difficult for you to pen your post here, but I hope you have found some support from the forum so far.
There is an alternative forum, which you may have already found, which is specifically for the partners of those lost to this cruel disease, you can find it HERE
You could also contact PALS and ask them to investigate why there was such a delay in scan results and treatment, this may, or may not give you a clearer understanding of how things escalated in such a dreadful way.
I also feel saddened to read that because of the incorrect comments of one (poor) counsellor, that you now feel that you are unable to trust any, there really are some people out there who are extremely good at just being there for others, without much in the way of telling what you should, or should not be doing..
I offer my condolences on the loss of both your Son and your Husband, and hope that you can find some support within these forums, through the difficult months ahead.
Lowe'
