Hello

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I was diagnosied with oesophageal cancer and at my MDT meeting I had some large nodes in tummy that also needed a biopsy they could not tell from imaging from Pet scan if cancer or not , last Monday inhad a biopsy through back to the node in tummy , today I got the results tomatoes it was cancer , so spread to lymph nodes bit not to other organs yet , they said no operation for me as I thought I’d be having flot/ op/ flot - my consultant said surgery is not an option but they are now checking to see if the node is HER2 postive if it is he can offer me a new trial treatment - or I can have capox chemo 

can anyone please tell me if they have experienced this or been on capox and how long for and did it shrink tumor etc - b rate I have a disabled boy you needs me and I need to be around for him , all inhave done is cry cry and cry - they have asked me to defer treatment till next week and wait to see if her2 postive and th en inhave a choice to do capox or trial - I’m all over the place and just can not process this - please someone give me some light - I’m 56 years old and I am so scared - anyone else not had surgery and doing well just in chemo 

I rang Macmillian and spoke to a lively nurse this evening who explained it a little better and gave me this group info

thank you in advance 

  • Hi,

    I’m sorry that you have found your way to this place. Somewhere none of us ever wanted to be. I’m afraid I can’t help you with any information about Capox as I went down the FLOT-OP-FLOT route but I’m sure there will be others along shortly who will be able to help and hopefully offer some positive encouragement. I know that there are many who have been treated with a mixture of one or more of chemotherapy, radiotherapy and immunotherapy. I’m sure your medical team will find a combination that is best for you. Try not to give in to despair. You’ll need all your strength and positivity for whatever route lies ahead. I wish you well. CB