Hello from someone Stage 4 GEJ cancer undergoing treatment

Hi Jaypoole

I am sorry to read of your diagnosis, but wanted to welcome you to the forum, as difficult as it can be, I am pleased that you have reached out here.. I see you also posted on another page, and have already had a response. 

I think you are right to be concerned about the increase in pain over the past few weeks, and it is important that you speak to your MDT, give your chemo nurse a call and let them know what is going on with you.   

Do you know which type of cancer you have, is it an adenocarcinoma? 

It is encouraging to read that you are able to have immunotherapy under PD-L-1 status, this is likely to offer you greater success if you are able to cope with the treatment they offer.  Do you have a picc line or a portacath for your treatment? 

From your post, I have not been able to determine whether you have any problem with food, but I was wondering whether you had looked into foods with antioxidant properties?  

I have a blog you can read if your are interested, you can access it by clicking on our picture and clicking on the Facing the future together link....  to get the full story you have to read from the last page as the newest post is always on top. 

My husband who is HER2 positive, but was originally told that he negative, has been living with his incurable condition since May 2000... There is always hope, and I wish you every success. 

Lowe'

Dear Jaypoole84. When you said you have been ‘lurking’ for some time, it really struck a chord with me as I was very much the same when I was initially diagnosed last May. I kept in the background for a long while. However, during this time, I found the various posts very beneficial as it made me feel I had a connection with people who I didn’t know, but understood. I also had minimal danger signs (swallowing food felt uncomfortable but only happened occasionally). 
I hope you are okay. It is great that you have had a good response and are on ‘maintenance’ and I hope that you can get reassurance on Friday. Good luck and keep on posting. With best wishes, Julie 

Thanks Lowe and Juie for your welcomes and it's nice to meet you both. As you say, it's great to talk to people who have some understanding. I will definitely check out the blog.

My cancer is an adenocarcinoma and all my treatment so far has been through a canula. Currently it is once per 4 weeks. 

I have never had any swallowing issues to date, with my tumour growing outward rather than blocking the oesphagusus. I now notice some minor gurgling in my throat and stomach on occasion, but I'm not sure if that was present before. I haven't really adapted my diet, apart from now taking a vitamin D supplement and turmeric and ginger shots that my wife makes for me.

Hi Jaypoole84

My husband has had more back pain since chemo 5 and he suffered bad with fatigue too, I wonder if it's to do with the body being battered from chemo, my husband was hoping the back pain would get better after chemo stopped.

Let me know what your oncology team say on Friday.

Angie