Hello. It is not I who has cancer but my husband. He was diagnosed with incidental early stage oesophageal cancer at the beginning of the year. He had and has none of the symptoms associated with OC. It was discovered by chance and is a complete shock. He has had slow growing Non Hodgkin's Lymphoma for many years and had a PET scan towards the end of last year to check that cancer's progress. The scan showed something unusual in his upper oesophagus and he had a gastroscopy with biopsies taken and a CT scan in December. These tests indicated that he had high grade dysplasia and this was the probable diagnosis conveyed to us when we met with the upper GI surgeon and the specialist nurse in early January. Last week my husband had another gastroscopy and more biopsies taken; he also had an endoscopic ultrasound. When we received the written reports from these procedures immediately afterwards we were shocked to read that the cancer is already T2. We are now hoping that the biopsies have been analysed
and wondering when we might hear from the nurse, surgeons and/or oncologists re next steps. I am of course glad that the King received very prompt diagnosis and treatment within days but wish that this was the case for my husband.
The waiting is hard and I'm feeling very anxious at the beginning of my husband's OC journey particularly in view of the fact that he has T cell lymphoma as well. I thought I would join this forum and hopefully 'meet' others in this position and further along.
Regards
Artemis
(I had to choose a screen name and it seemed appropriate)
Hi A1972
It is very stressful waiting for results but 6 weeks seems a long time. I would suggest chasing them for an answer as most of my tests, scans and results were kept at 2 weeks intervals.
Every hospital department should have a PALS team which is patient liaison. They can usually find out information and help you get answers.
Wishing you all the best
Dean
Hi Vonn my appointment is at 3.40pm so can update later. I'm expecting 4 more rounds of chemo on FLOT but they may suggest something different. My histology after the op was very good but it's down to them so will just have to wait and see
Thank you for your kind wishes
Dean
Hi Julie,
Many thanks for your best wishes and kind words. I hope that you are feeling better after your treatment.
Im also only looking at the positive. I’ve a long way to go and no doubt, many challenges but I’m going to try my hardest to keep my chin up,
Best wishes,
Steve
Thanks Steve. I am doing very well after my treatment and operation. I have written a blog (please click on my username if you wish to read) which details my initial diagnosis to final operation. Thinking of you and sending you my best wishes. Julie
Hi Vonn
All went well yesterday at the oncologist consultant appointment.
Histology report was really good, they took blood in preparation for next 4 rounds of FLOT which starts March 18th so I have another month to recover from op.
I know what to expect from the chemo so if all goes to plan will be finished treatment by early May
Then I guess it will be a scan at some point to see if it's gone.
Hope Andy is ok with next round of chemo I wish him all the best and hope he feels better afterwards.
Best wishes
Dean
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