Hi everyone,
My husband was diagnosed just a year ago of oesophageal gastric cancer (OGC) he had 4 rounds of Flot chemotherapy then a partial gastronectopy and then 4 more rounds of the Flot. He had complications after his surgery and still has them as part of his stomach pull up above his diaphragm and created a diverticulum where the food pooled and then stuck. He still has this problem and part of his stomach after the diverticulum is about 6mm so they need to balloon it again for him to be able to eat more solid food. He also aspirates often when he's drinking any liquid. He has a thickener that he puts in all his drinks but still this is hit or miss. Mostly hit and it leads to violent coughing and sometimes vomiting.
A couple days ago he went for his 3 monthly CT scan (this is his second one since the last round of chemo) he had one about a month after his last round of chemo, then 3 months later it showed that he had ascites and indications of secondary peritoneal in the lining around the abdomen.
He's 65 and this has completely devastated us.
I don't know if anyone has had this and can prepare me of what is to come or anything that might help.
Thanks
Hello BCCC
I hope you do not mind me responding as I had a different kind of cancer to your husband but I hope that it will help bump your post back to the top and someone with similar experience will be able to offer some support.
I am so sorry to see that your husband has oesophageal cancer and that there are indications of secondary peritoneal cancer. I can understand your devastation after he has gone through surgery and chemo. The symptoms after eating must make it very difficult for him.
Has your husband got a CNS that you can both talk to to find out what may happen now with regards to treatments, controlling symptoms and support with eating?
Alternatively you could perhaps give the Support Line a call and speak to one of the nurses who would be able to give you some practical advice as well as emotional support. They would also be able to help with the medical questions. The number is below and they are lovely on there.
Hopefully someone with your husband's type of cancer will now be able to respond to your post but in the meantime if there is anything else that you need, please just ask.
Jane
CNS - cancer nurse specialist- he is likely to have one assigned to him and they can be a first port of call for any questions or worries.
I hope the dilation helps him.
I hope that his chemo goes well for him with not too many side effects.
Jane
