Re: Dad recently diagnosed

Hi Lucycleo 

I'm sorry to read of your dad's diagnosis. It must be hard to believe if he still appears well. I have had a different type of cancer but I have had palliative chemotherapy and my cancer is currently stable. My cancer will never be cured but I can be treated. As there has been nearly a year since the end of chemo, I could be treated with that chemo again, if and when my cancer recurs. Just click on my username if you would like to read my profile.

By responding to your post, this will place it back at the top where it will be seen by more of the oesophageal group. I hope you get more stories to give you hope. Best wishes for your dad's treatment.

A x

Thank you so much, I really appreciate it, I’m pleased your cancer is stable at the moment that’s good! Thanks for replying to me xx

Hi Lucycleo

I am sorry that it has taken me so long to answer your post, i have been off forum... thank you for reaching out here, how is your Dad doing now. 

You mention that Dad is being offered palliative chemo, that is good, I think sometimes the word Palliative can be misunderstood.  My Husband Dal is on Palliative Chemo, and has been for the past 3 years and 4 months, he was diagnosed with Stage 4 Oesophageal Cancer with secondaries in his lung, liver and lymph nodes, at the beginning of May 2020, T3N3M1 GOJ  

I hope this gives you a little hope!

If you would like to read our blog, click on my photo and copy the link, you will have to start on the last page and work backwards if you want to read it from the beginning.  

I hope that your Dad has great success with his chemo and that he is with you for many more years to come 

Lowe'

Hi, Thanks so much for your reply, dad is stage 3 T3 N3 M1 spread to lymph nodes and lungs, apparently he is not eligible for immunotherapy as her 2 negative, so he’s started EOX regime, trying to gt some support from somebody going through the same cancer, dad has GOJ adenocarcinoma, most supper is for people having surgery, I know they said palliative which scared me but I’m hoping and prayig he responds well to chemo, he’s on his second chemo cycle and it’s battering him but managing, this is especially hard as mom passed away 4 years ago with lymphoma, I will certainly have a look atyour blog, I’m so glad your humans is doing well, I’m worried as my dad isn’t eligible for immunotherapy as I n on this is really helpful, 

once again thanks again 

I know it is all a bit up in the air for you at the moment, but Dal was originally advised he was HER2 negative, but that changed after chemo started.. Fingers crossed your Dad has some similar results. 

Thinking of you. 

Lowe'

Hi Lucycleo,

I'm almost in the same situation as your Dad, inoperable T3N3M1 OC. I'm on CAPOX chemo and immunotherapy.

Like your dad, looking at me you wouldn't know my diagnosis except for my problems eating solid food. Still fit and healthy really, walking and trying to keep cycling.

So far I've completed 3 cycles and it feels like my swallowing of food has improved lately. I've got a CT scan next week to see how my treatment has affected my cancer.

Palliative care does not sound great, but when its all thats offered you have to grab it with both hands and see where it takes you. Although its never going to be a cure, people nowadays are living with cancer, and hopefully this will be my lot.

Treatment and drugs are improving all the time and with luck your Dad will respond well, be strong for him.

I hope your Dad's chemo goes well for him and he is another story on here of people surving cancer.

Best wishes,

Steven. 

Hi Steven, 

Thank you so much for your reply it’s very much appreciated, can I ask how you tolerated the EOX, my dad has just finished his second cycle and it’s been pretty rough each time, I’m staying with him to help him through it, most annoying thing is nausea and lack of appetite, I agree when palliative is your only option you have to grasp it and give it all you’ve got, I see my dad trying everyday I’m so proud of him, nobody said fighting for your life would be easy, I’m sending positive strong prayers for good results on your scan, you sound like your giving it everything, 

thanks again for your reply, sending love and strength

Hi Lucylola,

my treatment is called CAPOX, so I'm not quite on the same chemo as your Dad. There is some overlap but your dad also recieves Epirubicin.

I've been able to cope well with my chemo, feeling nauseous at times and tingling/pins and needles in my hands and feet especially if cold or wet but otherwise just a little fatigued..

I hope your dad's symptoms and side effects improve though.

Take care Steven