New member

Hi and a sad welcome to the forum. 

Wow, I'm impressed with how fast your feels got into his chemo. I have OC and was diagnosed in march but don't start my chemo until this Friday, 9/6.

I haven't any info that I can share with you that will help but just wanted you to know that your story is being read about.

Sorry that the chemo hasn't work as well as you would have wanted. If your husband having an operation to remove the tumor or is that not possible for some reason.

There are lots of stories on this forum that will help you understand and some one will no doubt have gone through similar.

Please keep posting because by telling your story you are helping people like me who are at the beginning of the journey.

Best regards to you and all your family.

Geo.

Thank you for your post, and sorry to hear you have OC. Wishing you well in your upcoming treatment.

regarding my husband’s treatment we have never been kept waiting very long for scans or treatment even though the hospitals are always very busy.  An operation was discussed at first but due to the cancer having spread into a couple of his lymph nodes and spots on his liver they couldn’t do it. Fortunately the chemo did get rid of those but the cancer is at the junction of his stomach and oesophagus so no longer an option to operate.  He has tolerated the chemo really well, it’s just his eating that is the problem, we thought it would get better after the stent and at least he isn’t sick all the time, but he has no appetite .  The dieticians have prescribed calorie and protein drinks which have been a nightmare to get as Im afraid our own surgery have been the only NHS provider in all this to let us down. We have bought them up to press but thankfully Rotherham hospital have now sorted that out.  
it’s been a very long 18 months but the only thing you can do is remain positive! I am in total awe of my husband as he never complains at all, says it is what it is and gets on with it.  It destroys me when I think he has worked hard all his life, had prostrate cancer and overcame that at 64 and now has this. I have often thought about joining the forum and I’m glad I did as reading other people’s experiences of this cancer makes me feel we are not alone. Cancer is a very lonely place,  one that the sufferer and also their loved ones find themselves in.

kind regards

It's not a place any of us would want to be. I'm much like your husband. Keep living in the now and deal with it day by day.

I don't understand why they can't operate, especially if the chemo has reduced/removed other areas of concern.

I have suspected cancerous cells in a couple of nodes too but I am getting an operation after chemo. I read one man's story who had 46 nodes removed during his operation. I would ask for a review 

Regards Geo.

Hiws it all go budfy  with your appointment 

Hi Nic nac,

It all went good Pal. No treatment, just two hours talking about chemo and side effects plus taking blood, showing me the treatment ward. I've got some steroids to take starting tomorrow. I've been given the contract number to call them and had lots of stuff explained. Then I went for act scan. 

I have to go to hospital on Friday morning at 9 to get picc line put in then if the x-ray shows it in the right place I will start chemo at 10:30. They're giving me some anti sickness meds and some injections to take home and they've organised a district nurse to coming and take off infusion pump and change dressing on picc line on Saturday.

They emphasized a lot about the tingling fingers and toes and sensitivity to cold things.

I hope this finds you doing well Pal. Is it your third round on Friday? How are you finding the side effects? What sort of things are you getting?

Take care buddy.

Geo.

Buddy 

Sorry for my fat fingers spelling lol

My next 4th round Chemo a week on Friday,  first round will show you what will come each time gets a bit worse.  Dont worry you have a big team behind you your first Chemo talk is a lot to take in . But once you get first round of drugs in you will get into the pattern 

Remember plenty of water helps flush out Chemo listen to you body if you need a bap take one , you will be like a nobbing dog when fatigue  kicks in . Exercise  if you can buddy even a little helps . If you gave any major worries call the emergency  help line 

Hope this helps you on the riad to recovery 

Stay Safe buddy

I agree with nicnac… seems to be whatever side effects you get in first round they just seem to get slightly worse each round. The tingly fingers are a bit of a pain but I can still make a cuppa. Use a towel for holding milk. And run warm water on your hands seem to help. You will probably get it in feet too….. My advice is get out of bed, lay on sofa watch crap tv and nap when you want…. My latest chemo was last Thursday and I felt pretty crap from Sunday afternoon until yesterday evening… today feeling not too bad. Few belly aches here and there and great smelling farts!! And hair pretty much gone everywhere!!!! 
If you’re a beer drinker no cold drinks for a week after chemo! So single malt is a great option!!!!

Hi Ade, thanks mate. Great advice and very funny. 

My wife is very concerned about family visiting or me going out in case I catch some bug or other. Is this a big issue that I should be concerned about or just carry on as usual?

Geo 

Just take covid precautions and feel safe in what you are going to do  clean hands mask up , Don't go in freezer  section when shopping 

Hi. Before your second round you will get a blood test. Make sure you get the nurse to tell you whether the white blood count and platelet count are back to normal. Mine were each time, so I just kept myself away from people and masked on public transport for the first week of each cycle (when I didn't feel much like mixing anyway).