My husband has stage 3 oesophageal cancer which has spread to his lymph nodes and stomach. They found a lump on 30th December, Chemo started 8th March. The standard esophagetctomy isn't an option due to the spread. The doctors are offering a total removal of his oesophagus and stomach, leaving him with a stoma in his neck and being tube fed for 12 months. After this, as long as the cancer didn't return they would reconstruct with large bowel. We are worried about his quality of life after the first operation and also after the second one. We are trying to find someone who has gone through a similar thing to discuss the impact of the surgery on the patient and the family.
So very sorry to read your post, my husband had his stomach removed in Jan, I have read on one of the Stomach or Osophagus cancer forums (Macmillan) of someone having a bag on their chest, I’ve looked but sorry I can’t find it, maybe someone else would know. There is a Osophagus forum on face book, someone’s husband had both the stomach and Osophagus removed but didn’t have a bag. My husband Osophagus is attached to his small bowl. Sorry I can’t be of any more help and hope it goes well for you both x
Hi JsyStevie
Welcome to our forum, Sorry for my late response, have you had any more information?
Has the chemo had any positive effect on your husband? has any other treatment outside of surgery been discussed?
This must be so difficult for you both to come to terms with, and I am sorry that I am not going to be of much help, but my husband was diagnosed with OC stage 3,with lymph, liver and lung mets, no possiblity of surgery, this was in May 2020, he was given a very poor prognosis, but that was before treatment. Since he started treatment he has gone from strength to strength and although this is not the same for all, I do hope that there is a possibility that it may be the same for your husband.
The Macmillan team are available to be contacted on the number in my signature, they may be able to answer your question further as thehy have many years of experience.
I do hope that whatever the treatment is your Husband is given, that it works out best for him
Lowe'
Thanks for getting back to me. It is amazing that your husband is so well having been given a poor prognosis. The extra time is a blessing. The last chemo of the block for my husband is Wednesday. He will be re-scanned (PET) two weeks after, results the following week hopefully (beginning of May). If the cancer has spread then all options regarding surgery will be off the table anyway so we're trying to wait until then before making any decisions. We are hoping that they see a good response as he feels well on the chemo and is able to eat again. It seems cruel that I have him back, almost to his old self and they want to carve him up to make him "better".
It is great news though that he has reacted so well to the treatment.
I wish him every success, and hope that if surgery is an option and agreed that is all goes well.
It is difficult to know what to do for the best sometimes, but it is a blessing to have options.
Lowe'
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