Operation

Hi Jack8 me. I am coming up to two years post surgery after having had my oesophagus removed, totally. Jack8 me, I will be totally honest with you about my recovery, which was hindered by my having experienced serious complications, but what I will say is that you will have to be very patient and listen to what your body is telling you, I’m sure that you are learning how to do this after having undergone 3 bouts of chemo. You, and your family, will have to remain as positive as you can and just take things really easy to begin with and try not to exceed your new limitations, as you will only become frustrated, both mentally and physically! I still am very thankful when, each morning, I waken up and put my two feet on the ground and I say: “Hey it’s another day”! Acknowledge your limitations and you will be fine Jack8 me. . Please let us all know how things are going, pre-surgery and post-surgery. Michael 

Hi Jack, 3 months post op and back cycling and swimming. Not back to usual distances but working on it. I am 56 but I,m sure you will be the same, Kind Regards, Bill

Absolutely brilliant BillDem4! Hey I hope that your recovery continues and sure you will be back swimming ‍♂️ and ♂️ cycling  to your full potential.
michael

I just been told i have OC. My world fell apart now we are in the waiting game more tests  needed.  As anyone had Signet ring caner ? and had operation 

HiJack8 me,I had my op in January 2021, I think I can honestly say the first year was a bit of a struggle, I had highs and lows but as Jamesp says you must listen to your body and act accordingly I am now walking my dog twice a day and we usually do about 5 miles so I think I’m definitely on the mend. I was very lucky as I had chemo and radiotherapy and was told that the cancer had virtually gone but they would remove my oesophagus as a precaution. I’m so glad they did. I’m 68 now and feeling the best yet. I wish you all the best and I’m sure you’ll be swimming and cycling in no time.

Hi bill I’m 4 weeks post op and now waiting to undergo more flot . Out of 20 lynths 5 were positive!. I’m 55 and would love to know what alternative treatments you get offered as I don’t believe my first 4 flot made much difference . Hope all goes well 

Yes my tumour was signet cell. In the end if they are able to remove it during surgery with clear margins it doesn't matter what the tumour is.  It also responded to chemo before surgery. I looked arcane few studies and its response to treatment but the sample sizes were small and quite frankly didn't have the statistical power to make any real conclusions about the treatability of signet cell carcinoma in the oesophagus.  Just my view.

Mark 

Can you message me and tell me more about your op . I am waiting for mine 

Hi Nicnac, 

I fully understand that your anxious for information about what lies ahead for us.

I am in the same position, if a little earlier, I don't know what my prognosis is until Wednesday.

I am trying to read everyone's posts in order to better understand my condition, although I know it is unique to me there seem to be some more common protocols applied to this condition. 

If you ask Mark to personally message you, it will be depriving the rest of us of his experiences. So would you please ask him to post on here so that we can all benefit.

Keep posting about your journey please.

Thanks a lot and best wishes to you and your family from mine. Keep posting about your journey please.

Geo

Sorry didnt think it would be allowed  under GDPR but i fully understand  and will ask him to post live