Hubby newly diagnosed

Hi Quilter56,  

My husband was diagnosed in October, had a staging op in early December and started FLOT chemo at the end of December. He has his final pre op chemo tomorrow. Each session he has had chemo over 24 hours plus tablets and injections over the following week, the second week he has a blood test mid week the following day has a chat with the doctor and if all is well starts the next dose of chemo the following day. I do know there is another regime with different drugs but am not familiar with it. Hope this helps alittle.

Stay strong Patricksmum

Hi Patricksmum

thanks for the information. Much appreciated.  Hope all goes well with your husband`s op. X

Hi Quliter56,

I was diagnosed T4/N0/M0 in November 2022.  I can't have surgery.  However I have my last chemo this week (4 sessions including  a pump).  I am on Cisplatin and Flouroracil (5FU) as well as radiotherapy.

Not sure which chemo your husband will be on but most chemos can cause alot of different side effects. But you must speak to your Oncologist so they can assist with medicating side effects.  You don't need to struggle through it.  I suffered in silence during my first round as I was exhausted and just felt "wobbly".  This is the best description I can give you.  I didn't feel sick or have nausea just felt totally off kilter.  I found out that I should have been on higher dose steroids, stronger pain killers and antacids.  Once I had the meds I felt better.  So please speak out if your husband is struggling.  They will help you.

The best advice I can give you is to take each day as it comes.  Don't look to far in the future.  One day at a time as every day is different.  Macmillan have a lot of information booklets that describe the journey you are about to embark on.  If they have an office at your hospital, go and speak to them. They're wonderful.

Good luck to you both 

Mel x

Hi, hope you’re OK.

Have you considered a second opinion ?

With N0 and M0 you should be eligible for surgery unless there’s a complication like it’s wrapped to your aorta making surgery impossible.

N0 M0 is encouraging though and I’d say you should seek and second opinion for surgery (happy to recommend you my surgeon if you need opinions)

Hope it helps

Hi

Apparently it's too high up in my esophagus. She hasn't mentioned post chemo surgery, just that I wasn't suitable for surgery at the commencement of treatment. Be interesting what the result of my chemo-radiation treatment will be and what outcome I get.

Thanks 

X

Great ! Still time and an opportunity - happy to hear this ! Keep fighting it and keep walking forwards