Boyfriend diagnosed with Oesophageal Cancer age 31 :(

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Hi everyone,

today we received the news that the presumed Oesophageal cancer (tumour causing issues when eating) is actually that and that unfortunately it’s inoperable, with spread to liver, lymph nodes and arteries?

Just struggling with the results due to the age of my partner, at 31 being given 6-9 months is absolutely devastating and struggling to find anyone in the same situation. 

is there anyone else with experience with this at such a young age? & what is everyone’s honest experience of chemo and immune therapy. My boyfriend (and I full support and agree) that a life of chemo where you are essentially suffering for some extra time, isn’t actually worth it in the end if there’s no chance of getting better? 

he currently has trouble swallowing but can eat and drink most things, he’s just really suffering with muscle aches (back) and terrible night sweats - he has to sleep on a towel and change his bedding every day. 

I want to be able to make every day as comfortable for him as possible, any advice or shared experiences, I would love to hear. 

sorry we all find ourselves in such a heartbreaking situation x 

  • FormerMember
    FormerMember

    I’m so aorry to hear yoir news. I’m 41 and was recently diagnosed with colorectal cancer. I had surgery to remove my tumour and tomorrow go to find the histology results.

    personally I’m unsure what I’ll do if I’m told I need chemo but after ALL my research please do not underestimate the power of nutrition and emerging research around those changes.

    wishing you strength and big love from me xx. 

  • Thank you so much, we will have a look into healing from

    nutrition. 

    Sending you the same strength and love for your results tomorrow x 

  • Hello Penny. I'm very sorry to hear about your partner. This is obviously a difficult time for you both. I am a 58 year old bloke and was diagnosed last year with oesophagal cancer (similar symptoms) and cancer in my throat at the back of my tongue. The difference between me and your partner is it hadn't spread so I don't know if my story will help.

    My consultant at St Bart's in London decided to adopt an aggressive approach to treatment without recourse to surgery. That entailed four rounds of chemotherapy and a total of 63 treatments of radiotherapy split between both cancer sites. I can't be more specific about the doses strength etc because I can't remember much about my treatment, hospitalisation, conversations, visitors etc. The combination of treatments has affected my memory. It did though take its toll physically.

    I returned after the treatment had ended and had a scan. This scan showed that the cancer had gone. I'm now awaiting a further PET scan as a routine follow up.

    Initially I was told I had a 75% chance of dying within a two year period even after treatment. The consultant now says my chances of survival are around 50% over the next five years. I'm not sure if this all helps you both but I hope it does..Take care.

  • Hi

    So sorry you are on this journey.  I'm sure your heads are spinning. I'm sure the consultant will talk to him about immunotherapy options. There are several people on the smartpatients group who have been living for years on immunotherapy.  Cancer research UK also publish a list of research trials that may be useful.

    Best of luck - sending positive vibes

  • Hi Penny2023

    I am 29 and lost my mum recently to OC. My mum was very much in the same mind set in that she didn’t want to be constantly going to the hospital for chemo in the hope it could by more time, so she decided to go palliative after chemo made her unwell. 
    my mum also had back pains but it was hard to help her with this the worse her condition got, if your boyfriend is comfortable to, it could be worth him getting a massage? Lots of cancer charities will do things like this for free so see if you have one in your area. 
    I did find that I was pretty much caring for my mum and wanted to do this so she wasn’t doing too much around the house. But your boyfriend may want life to go on how it was pre diagnosis, so keep living the life you both love and make more memories, it sounds very positive that he can still eat a lot of things, keep this up if poss. 

    I hope this helps

    xxx

  • Hi Penny 

    My Husband Dal, was diagnosed with Stage 4 Oesophageal Cancer with secondaries in his lung, liver and lymph nodes, at the beginning of May 2020, T3N3M1 GOJ and at the time he was given a prognosis of 4 to 12 months. That was back in May 2020.

    I fully understand how devastating that feeling is, how frightening and emotionally challenging it can be, I don't know how you boyfriend is doing right now, but I do hope that the treatment he needs has been organised for him. 

    Lowe'

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