Hello all.
Like so many, the shock, sadness and pain of finding out my husband of 32 years has esophageal cancer, at such a late stage, has changed our entire life beyond belief. Our family, friends, work colleagues and neighbours have been amazing, not to mention the support of the team of cancer nurses at the hospital along with all the consultants who we have met. Not being operable, because of the cancer having spread into his stomach and many nodes, he is undergoing chemotherapy. Understandably, it has made him very sick, he has lost over 2 stone since the start of his diagnosis, he had a stent fitted and struggles to keep any food down. If he talks for too long, he is sick, if he thinks about taking tablets or food, he is sick. He eats food, not because he is hungry, but because he has to and then literally suffers painfully and doesn't talk for fear of gagging and throwing up, he simply goes to bed and tries not to move to try to keep the food down. It has got so bad, the cancer advice team suggested he comes off the chemo for a week, to try to settle the sickness (his weight is plummeting) and to start back on it on Monday. I am petrified of him going back on chemo on Monday, as he is permanently throwing up now, off chemo. He is struggling to keep any food down and if he does manage to, he gets stomach pains which cause him so much discomfort. While we know and expected chemo to cause nausea, I really want to know if anyone has experienced this on chemo with esophageal cancer and how they managed to maintain their weight, when everything you eat or drink literally comes back up. I feel desperate to talk to someone, but my husband insists that it is all ok and it will come right, but after weeks of losing weight and another 3 weeks before he has a scan to see how the chemo is working in his body and we meet with someone who understands his symptoms, I am scared he cannot go on for that long without some intervention. I wonder, has anyone else experienced this with this kind of cancer? If so, are there any helpful tips which could help us keep food down to enable him the strength to fight this cruel disease? Sorry if I have rambled on, I have tried to look up sickness on chemo with esophageal cancer, but I get the general sickness, which in itself is horrendous with this disease...... but I do feel that this is over and above what can be considered normal? Thank you to anyone who replies. I am so desperate to help him. Much love to all of you out there........ it is reassuring to know I am not alone, but fills me with sadness there are so many of us.
Thank you again, try to always keep smiling :)
Hello
Thank you for finding us and sharing some of you and your husbands story with us, I am so sorry that he is struggling so much with the treatment.
Everyone is different in their experiences, but I wonder if liquid anti sickness medication is available? Is there the option to consider a feeding tube as a temporary measure? Has the Oncologist or cancer team given any suggestions.
With regards to useful tips, when my husband was first diagnosed he was on liquid food, we would make smoothies containing high levels of antioxidant foods, this provided him with the ability to consume what he could when he could, whilst also hoping that the antioxidants would work some magic internally.
I realy hope some others come to your post and offer you some more thoughts, stay strong and as positive as possible.
Don't forget the Macmillan helpline, it is there to provide you with support too.
Thinking of you both
Lowe'
Thank you so very much for your response Lowe’
I made a call this morning to the 24hr cancer helpline and they booked my husband in to hospital. When we got there, he literally passed out. I just knew there was more to this than the awful sickness that is usual with cancer.
They are doing scans, tests and bloods thoroughly. They seem to think he has a blockage maybe somewhere....... But being a weekend, a lot of this won't be done until Monday, but .....he is in the right place now, hooked up to a drip to hydrate him! Oh, and looking a little healthier with a blush of colour!!!
Thank you so much. I appreciate you taking out time to reply to my desperate plea.
Keep smiling always. X
Pleased to hear that he is getting the support that he needs via the hospital,
Hopefully you have support around you at this time.
Sending love and strength to you both
Lowe'
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007