Hello looking for help for my husband with excess mucus (thick saliva)

  • 8 replies
  • 76 subscribers
  • 1121 views

Hello All

My lovely husband had 30 sessions of radical radiotherapy for tonsil cancer that had spread into tongue base. We are almost two years along. My husband still can’t eat anything other than liquids, soup and milkshakes. He still has a PEG tube to receive most of his nutrition. He has also had four dilatations after first two it shrank back second two have held. His swallow pipe as I call it, is now at 12mm. He feels like he could manage more if his throat wasn’t full of thick saliva all the time it seems to be getting worse. He has tried swilling his mouth with soda water, we tried lactose free milk, oat milk etc nothing seems to help. I am hoping someone has found something that has helped them. The coughing and spitting it out is exhausting for him. He is in most ways doing fairly well.

Thank you in anticipation 

shalls. Wiltshire 

  • Hi Shalls

    my husband was prescribed Nacsys 600mg, it is a effervescent tablet you put in water, and drink it.

    my husband has only just started it yesterday, but ask your doctor. 

    Best wishes

    junie

  • Thank you Junie dry mouth is bad enough but the thick saliva coats back of throat it hampers him trying to swallow anything and it’s too thick to swallow down. I will speak to our GP 

    best wishes to you both 

    Shalls

  • Hope you find something to help.

    let us know how you get on.

    lots of love 

    junie

  • Hi Junie

    Sorry to bother you again but how is your husband getting on with the Nacsys? Has it had any positive affect yet? We have a hospital team meeting tomorrow and I was planning to ask about it. 
    thank you 

    Shalls

  • Hi Shalls

    it has not helped him, he is going to contact his doctor tomorrow.

    you must ask your doctors what they can do for your husbands saliva problem. There must be something to help him. 

    Its not fair for him to stuffer with it. Please let me know how you get on, they may suggest something we don’t know about.

    oh and Shalls you are not bothering me, we are all in this together. Here for you any time.

    hugs

    junie

  • Thank you Junie

    i am so sorry it didn't work for your husband. we will ask tomorrow at our appointment. 
    I have just been reading about acupuncture for dry mouth. It’s hard to understand dry mouth and thick mucus at the same time!

    all the best

    Shalls

  • Let me know how you get on ,

    best wishes 

    Junie

  • Hello Junie 

    Following our chat we spoke to my husbands consultant about his struggle with the very thick saliva. She prescribed a medication call Carbocisteine. He has been using it 3/4 weeks now and it is a huge help. It hasn’t disappeared but he is finding it much more manageable. I hope your husband can get some relief also.

    best regards

    Shalls