Hello new here

Hi. It sounds like you are still in the diagnostic stage with various tests, scans, etc. being undertaken to determine what he has and what the best treatment plan will be. This is a frustrating but necessary process and I hope you get results soon. 

Hi

It's the waiting that's the worst thing , it was the same when he had cancer 8 years ago, everything just seems to be so slow but it probably isn't

Jenny

Hi Jenbob, I have had the same but closer together 1 year apart, I didn't have RT after my Lary but had chemo and RT for the OS cancer, I will be honest that depending where the cancer is in the OS it still could be hardening of the pips after the RT

My Stoma and windpipe was in a terrible mess during treatment for the OS and my Oncologist got extreemly worried and spoke with my ENT Consultant. My OS was high up mid chest and despite the Radiotherapist's assurances the treatment well and truly effected me.

So fingers crossed 

Take care both, Tony

Hi kasvin

Sounds like you've had a tough time of it , how are you now ?

I heard from hubbys speech team yesterday and apparently the MDT are getting together tomorrow (weds) to discuss his case so we're hoping for some news soon

Jenny

Hi Jenny, thanks for getting back and as it's Wednesday hope all will be well with you both and also that the news will be helpful, I found like others the waiting is awful and I was well lets get on with it.

As for me I'm fine, when us survivors know there's surviving but there is always those changes to us, and as you and your husband know what a big change a Lary makes to us in more ways than our new look !!! depending on his OS place if it is cancer and follow-on then really until you all know that then who knows, I was I know extremely lucky that where it was and that as I hadn't had RT with my Lary then I was able to be treated- my Consultant said when they found it she thought I was a 'bloody Fool'  for not having the RT but you were right as if I had of had it RT treatment would have been off . I don't have swallowing problems but I do have to tend towards having sauces with meals or soft foods, I rarely risk stuff such as steak outside of home just in case its chewy or a rough piece of meat so stick with stuff like lasagne etc.

I do hope it's either good news for you both or at least good to treat, please let me know
Take care both, Tony

Hi Tony 

Yes the laryngectomy is something else and appearance wise lots of stares from people but we take it as it is and it did save hubbys life, he misses having a steak which was his favourite, hope he can eat and drink again even if it's soft food , it's no fun through a tube 

We have just heard from hospital and we have ent appointment tomorrow morning so we will soon know good or bad 

Take care 

Jenny

UPDATE 

So the cancer as returned and now waiting for PDL1 test results to see if hubby can have immunotherapy if he can't then it's chemo

Hi Jenny,

Sorry to hear the news, I do hope everything can be sorted for both of you and thinking of you both, tough news but if he's battled the Lary he's made of tough stuff, keep in touch 

Tony

Thanks Tony although we suspected it had come back it's still hard to hear those words again the cancer as returned ,yes he is made of tough stuff, fingers crossed he's strong enough for this as well, they've decided he's got to have his feed tube out of his nose and one put in his stomach, so we're seeing the nutritional nurse next week about that 

Will keep you posted