Just been given 6 months

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Hi

Well I’m kind of new here, I set up an account a while back but until the other day stayed away.

I’m 52 and was diagnosed with oesophageal cancer May 24 followed by chemo/radiotherapy and an oesophagectomy.

I was then put immunotherapy nivolumab for 12 months which was a curative pathway.

i was scanned every 3 months which were all good initially but by end of the summer 25 it was starting to go south.

i had started to develop nodules in my abdomen plus inflamed lymph nodes too.

i was told in February that the cancer had metastasised and spread to new stomach, chest cavity, near my liver and lung 

naturally I was devastated as was my wife and family, at this point I was told low years with treatment and put on chemotherapy.

i had 4 rounds plus daily tablets and felt awful but pushed through. I was them ct scanned again which showed significant progression despite the chemo.

i start another type of chemo next Wednesday with a hope to slowing growth.

I’m absolutely gutted as we were told that despite treatment I’m looking at around 6 months especially if things don’t work, I’m also being put forward for possible trials.

Is anyone out there either been in or is in this type of situation, I’m still in shock as I only found out yesterday.

I’ve got kids a lovely wife and all round lovely family and friends who are completely shocked and in disbelief.

Im even looking at alternative methods which I know is controversial but I’m running out of time and

getting desperate.

Ive already completely changed my diet cutting out all refined sugars ,alcohol, anything ultra processed 

any advice welcome, thanks in advance 

  • Hi Jack,

    So sorry to hear that, having gone through so much already, you have been given such devastating news. It is the dread that always lives at the back of our minds. I hope that you are able to find a trial which will have greater success or at least give you more time. 

    Cool Blue

  • Hi Jack

    I’m so sorry to read this, what a horrible shock for you and the family. I know it doesn’t help but you’re not alone as my husband is being treated for a recurrence and whilst initially the chemotherapy kept the disease stable for a few months it’s now spread along the outside lining of the lungs and the tumour that has regrown at the new join has got bigger. He’s had a break from chemo for 6 weeks and he’ll be starting a new drug next week. He’s already very tired and thin so we’re both a bit worried about how he will cope but he wants to give it a go. He’s been given 12 months with treatment if it works and 3-6 months without! 
    There are more details of our ‘journey’ on my profile.

    Sending you lots of strength at this difficult time.

    Jane x

  • Hi cool blue

    Thank you for your message.

    Im so undecided at the moment as the consultant said 6 months with treatment. This leaves me with the dilemma of continuing with treatment feeling absolutely awful or deciding to switch everything off.

    As you can tell I’m all over place and contradicting myself.

    It’s the dread , like you say,and the waiting, whether it’s the results or for the inevitable.

    I hope whatever is challenging you in your life isn’t bringing you too much pain an you have support x

  • Hi JaneD

    Thank you for your reply. 

    I’m sorry to hear about your husband, it’s just such an awful existence whether you’re on treatment or not especially when you’re given a time as the worry and what if’s takeover your mind.

    If I’m honest I’m getting to the stage ,after 2 years of treatment, that I need a break for at least a month. My consultant told me that it’s time to get affairs in order which I can’t do whilst sick and don’t want to leave it all to my wife who I also exhausted emotionally but continues somehow to be my rock.

    So I suppose the big question is do I ever go back on treatment as the chemo and immunotherapy have both failed or do I accept my fate and at least be myself?

    I’ve got the hospice nurse visiting me on Monday to discuss my options there, I know this sounds like I’m giving up but I’m just exhausted from all the treatment and bad news.

    I do hope you’re husband gets on better with his new drug.

    wishing you all the very best x

  • Thanks Jack for your kind thoughts. Taking a break seems very sensible and thinking through what’s best (rock and hard place comes to mind!). We’ve done a bit of that too and I’m half prepared for Paul to start the chemo and then stop because it’s too much to cope with after all he’s been through. 
    I’m concerned about how tired he is before he’s restarted but we’ll see how it goes. 
    keep in touch and all the best to you too. 

    Jane x